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  1. This treatment interests me because I have severe air sickness, which prevents me from traveling. It begins with yawning/fatigue, then head/neck ache, nausea and then vomiting. I also get sea sick (unless the boat is moving quickly through the water) and can often get car/bus sick when I’m sitting in the backseat.

    My question is: Do you think this therapy would help me? I’m not dizzy on a day-to-day basis and I’m fine walking through shopping centers in the bright light. I do have poor night vision (and the glare of the lights whilst driving at night makes it difficult to see). But my main wish would be to get rid of the air sickness as it’s very debilitating and restricts a lot of things I’d like to do.

    Thanks!

    • Dynamic Adaptive Therapy for the SSS results in a cure for air, as well as car sickness, in most cases. So yes, it should eliminate your air, as well as car sickness.

      You appear to have “standard” motion sickness and have not progressed to having the SSS. The therapy works just as well for both conditions. Happy post therapy travels.

  2. Hello Dr.

    Thanks for your research! Would you say your method is much different than vestibular rehab? Also, where can one get the balls w/ the letters on it for the eye exersises?

    Thank you for your time,

    Mezo

  3. Dynamic adaptive vision therapy (DAVT) is similar to certain vestibular therapies in some ways, but is directed primarily towards improving visual function.

    Alphabet balls, AKA Marsden Balls, can be purchased at Bernell.com, a vision therapy supply company. You can also, make your own by writing or putting stick-on letters on a small solid sponge ball. An “eye” screw or a paperclip wire partially straightened and pushed through the ball, then cut and bent to make a loop can be used to attach the chord.

  4. Dr. Gillilian
    My name is Melissa Wilburn. I was in a car accident years ago and had a concussion. Like many of these other people struggling I have been to every doctor you can imagine. Long story short, you recommended me going to visual therapy in Austin at http://www.austinvt.com/. I went through the entire program and although the therapy was great, I have no difference what so ever. I do have every condition that is on your website and they did all the exercises that you talked about. My question to you is. Have you ever heard of Nerve Decompression surgery working for these symptoms? I went to Dr. Ducic at Georgetown University and we did temporary nerve blocks and I was 100 percent better for 10 hours. I was able to look up, look all around. I went into a crowded airport, even had no struggles on the plane. It involves cutting the muscles around the nerves in the lesser and great occipital nerves. I was just wondering if you had any thoughts or suggestions. Thank you for all your wonderful help you do for others.

    Melissa Wilburn
    Dallas Texas
    214 536-8566

    • Thank you for including your phone number. As I mentioned in our phone conversation, I have had no experience with patients with nerve decompression surgery. If and when your your issues are resolved, please post your additional comments on this site. Thank you.

    • Did the nerve surgery work for you? My son had this with Ducic for Intractable Migraine from a severe concussion and it worked. He didn’t have the dizziness though.
      I have Vestibular Migraine and was wondering if it helped with your dizziness. Please let me know I’m desperate for more info.

  5. Hello Dr,
    I have had the exact symptoms described in the symptom matrix of your SeeSickSyndromeManual.pdf as well as your video. At a recent trip to my eye Dr, Symptoms were easily triggered when the eye Dr asked me to follow his finger without moving my head. ENTs have ruled out any inner ear issues, neurologists have ruled out anything in their field, and blood tests ruled out diabetes or vitamin/mineral deficiencies.

    My symptoms first started with me 2-3 years ago after I had a serious bout of vertigo, during which I felt the world was spinning around me very fast, and i got nauseated & vomited 8 times in one sitting. The vertigo lasted 5-7 days and residue dizziness similar to that of SSS has not gone away since then. Granted the symptoms come and go, and are exacerbated by extensive use of computer. When I saw Drs back then, they could not confirm the absolute cause of the vertigo, and concluded it may be a viral infection of my inner ear.

    Recently, 2-3 years after the above, my dizziness has worsened in cars, supermarkets, airports, and in front of computer screens. There are no eye Drs or ENTs in the country where I live that are familiar with SSS, so I have started doing therapy on my own after finding your site. I have a few questions for you:

    Q1: Is vertigo related to SSS in any way?
    Q2: Assuming I have SSS, what is the success rate of the SSS therapy in your patients?
    Q3: Do you recommend only 14 consecutive days of SSS therapy or more?
    Q4: If i start feeling better 2 days after starting therapy, should I continue the whole 14 days anyway?
    Q5: Is there a therapy maintenance phase after the initial 14 days or will this period cure SSS permanently?

    Thanks.

  6. Please excuse my delay in responding. I will try to answer your excellent questions, but keep in mind, in these complex situations, there are often “grey area” unknowns.

    Q1. True vertigo is normally an inner ear issue, causing the world to spin.
    However, it is possible to have both conditions at the same time.
    Q2. My success rate with SSS patients was about 80%, Some other OD’s claim
    a higher rate. “do- it yourself completely on your own” rate would be lower.
    Q3. Most patients benefit from doing the therapy for at least three weeks.
    Q4. Yes.
    Q5. Most successful therapy patients have no relapses. However, a few do.
    When that happens, the symptoms normally go away after a brief home
    do-it-yourself session or two.
    After completion of formal the initial therapy, I recommended a periodic
    brief routine of simple side-to-side and far-near exercises to maintain the
    acquired skills at a high level.

  7. Dr. Gillilian,
    First of all, can I just say thank you!
    My name is Tom and I live in Inverness, Scotland. I have been working in IT as a software developer for over 20 years.
    Two years ago, I started to experience nausea/headaches/dizziness when looking at my computer screen. It got so bad that the only way for me to recover was to take at least two days rest from work. I also discovered that I was feeling nauseous when driving short distances (but it wasn’t so bad when it was dark).
    My doctor couldn’t help me so I was referred to 2 different ophthalmologists. They were a loss as to what the problem was so they suggested the Visual Stress Clinic in Glasgow where I was prescribed glasses with coloured lenses (These helped to reduce the headaches I got from bright lights but they did not cure the nausea and dizziness I experienced when driving and using a PC).

    It was only a year ago that I read about SEE sick syndrome. I couldn’t believe it when I read the self-diagnosis since I could tick almost every box!
    I went back to my doctor and ophthalmologists because I was convinced that this was what I had, but neither of them had heard of SSS. I told them I was going to do the therapy anyway. After about a week of doing the exercises, my symptoms disappeared. I continued doing the exercises for the recommended time and thought I was back to normal.
    However, a week after stopping the therapy, I was back to square one again, feeling nauseous.
    So, I did the therapy again, doing both exercises rigourously everyday. When I stopped the therapy, I managed to go for four weeks this time but then I went back to feeling nauseous again. So, at the end of last year, I started doing the therapy again and I am still doing it now (I do one exercise per day to keep me ticking over) because I do not want to go back to feeling sick all the time.

    What I have discovered recently is that any motion, like scrolling, on a computer screen makes me sick. Eg If someone shows me one picture on their smart phone and flicks it to the side with their finger, I experience instant nausea.
    Obviously, working in IT, I use a computer screen all the time but I am very careful to close my eyes when I am scrolling.
    The thing is, this kind of movement never used to bother me.

    I know you mention that some patients have relapses but going through the therapy again should cure them. With that in mind, I would love to know if I am somehow not doing the exercises properly?
    If you can help in any way it is greatly appreciated.
    thanks again
    Tom

    • Tom
      Sorry for the delayed response.
      I am not sure how to respond to you because I am not aware of others who have had this same experience. Those few who “regress” at some point, find it very easy to do minimal re-training and the symptoms go away quickly. You might possibly find a way to improve your situation by watching the 53 min. instructional video on this site, done at Pacific University. In this way you can evaluate your own methods and make adjustments if needed. If there appear to be no therapy errors, you could try to devise your own therapy procedures by starting with observing slow vertical scrolling and lateral photo motion and gradually increasing the speed of the motion and see if that makes you less sensitive to it.
      Roderic W. Gillilan, OD
      Interestingly, the Glasgow, Scotland Herald newspaper published a feature article about the SSS, “See the Way to Curing Motion Sickness”, in 1986.

  8. Hi! I can’t describe my relief at finding your site. It finally put two and two together for me on so many issues, even some symptoms that I thought were “normal” but evidently aren’t.

    My problem is finding someone near me to help. Is there anyone practicing your treatment in/around Dallas, Tx? Or a way to purchase the program from you? I realize it is more effective with a professional, but at this point, going it on my own is better than no help at all.

    Thank you so much for your time,
    Krystal Hall

    • I am not aware of any doctors of optometry or physical therapists in your area who are experienced with SSS diagnosis and therapy. However, there very well could be several. You could try calling various OD’s who provide vision therapy and PT’s and ask about it. If you do not get a positive response, you could ask the practitioner to access the this SSS website and use these guidelines to guide them in helping you. If all else fails, you could do the therapy completely on your own. You would need to read every section and watch every video on the site and follow the instructions. Your chances of success are much greater with professional guidance, but some have successfully completed the therapy on their own. Good luck to you. Roderic W. Gillilan, OD

  9. Hi. I am from uk i completed your program few weeks back i can see the movement on the screen and on the tv now wish i was not abel to see before the program help me a lot but after doing so much spinning exercise my eyes gone sensitive to higher resolution screen like my i phone or clear picture on the screen i can not look at the ipad now. I did suffer from virtigo few years back. movement is not the problem but the light is. Any think i can do to help with seeing smart phone. Thanks

  10. It is possible to become more generally light sensitive temporarily during the training process. but I am unaware of other SSS training patients being successful with reduction in sensitivity to motion but becoming more sensitive to light when using digital devices. Were you sensitive to light generally, prior to your training and are you now more or less light sensitive, when not using your devices, than you were before? Are you OK with the light on the TV now? Did you have professional help with the training? It is possible that the brightness setting on your devices is too high for you. Try reducing it considerably and let me know if that makes you more comfortable.

  11. Dear Dr. Gillilan,

    I’ve been suffering from the exact symptoms presented on this site for several years and haven’t found relief. I’m due to start my PhD studies in Clinical Psychology at a prestigious university in the fall, but am unsure if my condition will allow me to fulfill my obligations.

    Excelling in my field while dealing with my symptoms proves that I’m highly motivated, and I’ll bring this to training exercises. However, I live in Ontario, Canada and don’t know where to go for guidance. Is there anything you would suggest? Thank you for your time and consideration.

  12. I am not aware of any doctors of optometry or physical therapists in your area who are experienced with SSS diagnosis and therapy. However, there very well could be some, especially if there should be any who graduated from the Pacific University of Optometry in Oregon. You could try calling various OD’s who provide vision therapy and physical therapists specializing in vestibular rehab, and ask if they will help you, using the Dynamic Adaptive Vision Therapy guidelines in this website.. I would be pleased to offer assistance to them if needed. If all else fails, there have been some highly motivated people who did the therapy completely on their own. You would need to read every section and watch every video on the site and follow the instructions carefully. Your chances of success are much greater with professional guidance, however, even if the practitioner has had no experience with the SSS.

  13. Hi. I read the symptoms of mild SSS and was astounded to how well they match what I experience: mild photo phobia, dizzy spells when scrolling on my cell phone, mild headaches occasionally after heavy reading, difficulty following a line (when using Excel I often have to use a ruler to not misplace the row), the inability to ride in the back of the car (I get mild nausea), and getting sick simply by looking at my daughter ride a carousel… Eye doctors, on occasional consultations, think I’m just fine because I see 20/20, and recommend glasses (minor correction) that help with eyestrain but not the nausea…

    I am in Latin America and would love to do the therapy. I saw the video, but wanted to delve deeper into the PDF. However, the link is not working so I cannot download it. Could you please help with repairing the link or sending me the PDF! I would be very grateful!

    All the best,

    Alejandro Vasquez
    Formerly “resigned” SSS sufferer

    • The SSS Manual link from Pacific University College of Optometry was re-established just today. It contains comprehensive information including diagnostic and Dynamic Adaptive Vision Therapy (DAVT) procedures. If you are convinced you have the SSS – and it certainly appears that you do – and your health care providers have ruled-out other conditions, and you intend to do the the DAVT on your own — it is very important that you view and read ALL of the videos and written information on the site, at least twice, including the SSS Manual. If that much reading is too difficult, have someone read it to you. The better informed you are on the subject, the greater your chances of success. The greatest challenge is determining the proper level of training intensity and following through.

  14. Hello Dr. Gillian. I have been suffering from an undiagnosed ocular neurological balance issue for almost 9 years. I am happy to say that thanks to discovering this site thus evening, I may be close to finally having an answer. Much of what I have seen and read on this site connects with my issues. I struggle with both balance and cognitive issues 24/7, but they are exacerbated when in the presence of busy visual environments (fluorescent lights, grocery stores, working on the computer…). I live in Canada and would be so grateful if you could pass on some information as to what I could do or who I could see to finally rid myself of this awful problem. Thanks in advance for your response.

    • Hi I am suffering with the same as you for 15 months constant dizziness. Doctors are saying it’s mal De barkqument syndrome and other saying there is no such thing. The first video sounded like me and done a few exercise today and it’s seems to of helped. Did u continue these exercises ? How did you do? Hope you are well this is a horrible illness but this doctor here may have the cure I am glad I come across this site !!

  15. I live in a very remote part of California, with no providers within a 3 hour drive. I have watched the youtube video and feel I can do most of these at home. Where can I get one of those little balls?

    • You can make the alphabet balls yourself by writing on or attaching stick-on letters to a ball attached to a string. They are officially called “Marsden balls” and can be purchased on-line from the Good-Lite Company. If you don’t see them listed in the product list, write “Marsden balls” in the search box.

      You can probably do the training yourself if you are highly motivated and disciplined. In addition to watching the video, you need to read the on-line SSS Manual from beginning to end. Unfortunately, the link to it from the Pacific University website is broken now but they are working on restoring it.

  16. While/after tv, or using computer/laptop/ smartphone, I feel dizzy and seems to fall at times. Im having a daily discomfort with this. Im sporting headache almost everyday. Either theres a pain on topmost part of my head or at the back of my head. Also I feel neck, shoulder, chest and back pains regularly. I tried massage options, but it recurs. Also I feel abnormal palpitations and makes me weak instantaneously. On almost all of the symptoms of SSS, I feel those everyday. Can you give me an advice. Thanks doc

    • You very well my have the SSS but it is possible to have other conditions at the same time. It therefore, would be wise to see your health care provider and role out other factors before proceeding with training for the SSS. Educate yourself by viewing and reading ALL of the information on this site, then move forward.

  17. You will find the answer to your question in some of my replies to other similar questions above. The manual I wrote about is now back on-line, so if you view and study EVERYTHING on this site, you should have all the information you need to proceed. If reading and watching creates symptoms, rest frequently or have someone do it for you. Make sure you are well nourished and rested before you start. Write again if you have specific questions.

  18. hi dr gillilan,
    can these exercises cause any harm or make symptoms worse if you do them and are unsure if you have sss? I have some dizziness issues that I am trying to resolve and standard vrt has not helped. doctors are unable to give me a specific dx. as to cause of my dizziness. I am taking it upon myself to try these exercises at home to see if they help.
    thanks

  19. I have been dizzy, light-sensitive, and extremely fatigued for about a year now. My symptoms get much worse when in grocery stores, looking at a computer screen, and sitting passenger in a car. I was told by an ENT I had some sort of vague inner ear problem and standard VRT did not seem to help. I am worried I will lose my job soon because I often get so nauseated from the computer screen and the fluorescent lighting that I am not being very productive. I think I probably have see sick syndrome, but I have a few questions:

    1. Is SSS the same or similar to visual vertigo?
    2. Does insurance often cover the cost of therapy? I am willing to do whatever it takes to make these symptoms go away, but money is tight.
    3. Will I be able to undergo therapy and still continue going to work each day?
    4. Can I take any medications to treat the nausea (like meclizine) and anxiety (like an SSRI), or will that ultimately make the therapy less effective?
    5. Do I need to stop all caffeine intake altogether? I don’t know how I would get up in the morning otherwise, with the constant nausea and fatigue.

    I checked the provider list, and it seems Dr. Etting is nearby (I live in LA). I plan to call later to see what I can find out about costs. Otherwise, I may have to try doing the exercises at home.

    Thanks for your help!

  20. Jake,
    The exercises can and often do cause SSS symptoms to worsen the first few days.
    I am not sure what you mean by “standard vrt”.

    I will attempt to answer your questions:

    1. Possibly. The primary symptom of true vertigo is when the world appears to be spinning around you. This normally does not occur in SSS but visual motion does produce SSS symptoms, including dizziness.

    2. Sometimes. You would have to discuss this with your provider.

    3. Possibly, but the first few days are often the hardest. That is why it is recommended the DAVT be started when you don’t have to work for at least three days or more. After that, most patients can adjust the degree of difficulty each day so there is little daily long lasting after effect. If one has worsened symptoms for more than an hour or so, they have probably been over training. There is a fine line between training hard enough to get the max benefit and over training. Being well rested, having good nutrition and avoiding “other” triggers of motion sickness should make you less likely to develop symptoms.

    4. I have had limited but positive experience with having patients train while taking symptom reducing medication. You may also, wish to consider trying acupressure wrist bands (Sea Bands) and/or taking ginger during training to control symptoms,

    5, It seems possible that caffeine intake affects the training. Therefore, you might try to minimize the caffeine intake by mixing decaf in at first, then increasing it as you adjust.

    It does sound like you may have the SSS, but it is always possible you could some other condition in addition.

    I recall one SSS patient who was thinking he would have to take a medical retirement from his job as a high school principal. He then however, was diagnosed and successfully completed the therapy and went on to work for several more years free of symptoms.

    In another case, a university music professor had to take a medical retirement, due to the SSS. Unfortunately, he was not diagnosed and successfully treated until after he had already retired.

    One additional thing. A new SEE Sick Syndrome Facebook page has been established by a SSS person whom I do not know. You may wish to check it out and join the conversation.

    I hope this helps a little.

  21. I AM CURED! Sorry for the attention grabbing headline but I have experienced many of the same problems that a lot of you are writing about and I want to help.
    My name is Tom, I live in Inverness, Scotland and I have worked in IT for over 25 years. I never used to get ill when looking at a computer screen (or when driving in a car). However, three years ago I started to experience nausea/headaches/dizziness when looking at my screen. Like a lot of you, I thought I was going to have to give up my job but after a long time searching on the Internet, I eventually read about SEE Sick Syndrome (SSS) in a post about, “Computer Monitors and Dizziness“ in a forum for American Federation for the Blind (AFB)***:
    http://www.afb.org/forum/technology-talk/computer-monitors-and-dizziness/12

    After I read the above post, I found this website. I couldn’t believe it when I read the self-diagnosis on this site because I could tick almost every box. So, I looked at the Dynamic Adaptive Vision Therapy video and I tried it for myself. After about a week of doing these exercises, my symptoms disappeared.
    Before I started these exercises, if someone had shown me a picture on a smart phone, I would have felt ill within about two seconds. Now I have a smart phone that I use myself!

    I posted a reply on the American Federation for the Blind (AFB) forum on 16 January 2015 which details all a lot my problems & solutions for things like nausea, headaches, migraines, dizziness, photophobia/light sensitivity (See link above*** for details) but for the purposes of this forum, I want to repeat a couple of points because I notice that people keep asking these questions in relation to SSS ie. do you need to be diagnosed by a doctor, do you need help to do the training therapy etc
    First of all, I was not diagnosed by a doctor. Yes, I spoke to my doctors but they knew nothing about SSS. However, their opinion was that the exercises (Dynamic Adaptive Vision Therapy) wouldn’t do any harm.
    I did not consult anyone to help me with the exercises. I just looked at the video and learned them for myself. Incidentally, I listened to music or audio books while I was doing the exercises and this helped to make them less of a chore!

    I hope this helps!

  22. Hello. For years now I have suffered from many of the SSS symptoms … I get nauseous and headaches from reading, watching tv/movies, browsing on my phone. The eye doctors always told me I had 20/20 vision but needed to wear glasses because my eye muscles never relax. My pupils are often dilated. Headlights when driving seem like they are blinding me. I experience no motion or air sickness though. However even of I wear my glasses I get nauseous, tired and extreme headaches . It seems to get worse over the years. Any suggestions?

  23. It sounds like you may have the SSS. Even though you say you have no motion sickness, from your comments, I suspect you do. You probably cannot read in a car, for instance. Read a few the posts of others and my replies and follow my suggestions to some of the them. That is, take the time to educate yourself about the SSS and then act accordingly.

  24. Dear Dr. Gillilan

    Thank you for providing this website as a public service.

    I think I may have the SSS, but my symptoms are not 100% corresponding with your list. Another diagnostic issue may be my conception of the term «dizziness», as English is not my mother tongue.

    I have not been able to find that much explicit information about brain fog and other cognitive symptoms on this site, and I have such symptoms. Could my problems still be connected to SSS? Are the brain fog symptom maybe «included» in the term «dizziness», e.g. feeling of being lightheaded?

    My balance is in general not so much affected. The symptom that is mostly affect my quality of life is the brain fog, which affects my ability to remember words, perform cognitive challenging work and build up sentences in written rapports in particular. I am an engineer, so I cannot really escape cognitive challenging work/ calculations, rapport writing and extensive computer work.

    My main symptoms are as follows:

    1. Driving a car:
    Dizziness and brain fog, but usually not so much eye strain. The dizziness increases when I have to rapidly shift view/ focus from one side to the other, like watching for other cars in intersections or when checking my blind spot on the motorway.

    2. Working on the computer:
    Brain fog and eye strain. Severe eyestrain when intensively «searching» for information on the screen and scrolling a lot. Not so much dizziness though. What is strange is when watching TV I’m not particularly bothered.

    3. Visiting a bright lighted store or supermarket:
    Dizziness, brain fog and eye strain. More severe symptoms if I search for products along the shelves, especially eye strain. The brain fog I’m experiencing often makes me forget things on my «shopping list».

    4. Walking and jogging:
    Dizziness and some brain fog. Not so much eye strain. I find it a bit difficult changing point of view, e.g. shifting my view from the trail right in front of me to something distant, especially if I have to change the direction of my view.

    5. Driving a motorcycle:
    Like driving a car, but more severe dizziness, and even the feeling of losing my balance, when shifting views/ focus.

    Main question:
    Is it possible that SSS is the culprit of all of the symptoms mentioned above?

    A bi-question:
    What do you think about flickering light? I have thought a bit about this because I know flickering light occurs both in stores (light tubes) and when looking into a computer screen (pwm backlight, refresh rate, color dithering, and more).

    Best regards,

    Marius from Norway

    • The terms brain fog and cognitive symptoms have not been discussed on this site previously. It is possible however, that both conditions might possibly be present in selected SSS patients and just have not been mentioned in those terms. I am not sure about this.

      Some SSS patients complain of dizziness and/or lightheadedness. These sometimes vague terms are used interchangeably at times.

      1. Dizziness is common in SSS patients. I am not sure about your brain fog associated with any of your activities.

      2. Eye strain is common SSS symptom while working on a computer. Surprised this would not produce dizziness in our case, however.

      3. Dizziness and eye strain are common with SSS in stores. Searching for items requires more eye movement, thus more symptoms.

      4. Shifting of gaze will often cause symptoms in many situations.

      5. Some SSS patients find driving a motorcycle difficult or impossible.

      Yes. It is possible you have the SSS, but also possible you could have another condition, in addition. Rule out other medical conditions and then move forward with the training if you wish. You could do provocative testing such as rapidly moving your gaze from side to side for 10 or 20 seconds. If this creates your symptoms, it may confirm your self diagnosis.

      If you do the training and your symptoms improve in a few days or weeks, that would pretty much prove have or had the SSS.

      I am not sure about your flickering lights question, but know that some seem to be sensitive to it.

      • Thank you very much for your detailed answer. It is much appreciated.

        If I do provocative testing as you describe; rapidly moving my gaze from side to side for 10 or 20 seconds, I do not develop strong symptoms. However, if I move my head instead of my eyes, and just let my gaze follow my head movements from side to side, I immediately develop symptoms like dizziness. Do you have a comment on this?

        • You might try to do the provocative eye movement testing for a longer period of time. Possibly up to 50 or 60 sec. Of course, stop if symptoms do develop. Dizziness with head motion only could be from the observation of motion and/or an inner ear dysfunction.

    • I am looking into using this program. I have an autonomic nervous system disorder, so all along, for many years, thought that my SSS symptoms were from that, and didn’t look any further. Then, recently, I began getting symptoms after my car AC was repaired, and the car developed a “shake”. The shake was resolved, but I am now sensitized to the motion, even though the shake is gone. I have also started to react to the floor shaking when my washing machine goes through the spin cycle! Yikes! This is just too much!

      I wanted to address your question about the flickering lights. I have had “motion sickness” sensations from LED lighting for awhile. I did research and discovered that LED lighting strobes. I wasn’t affected by fluorescents for a while, but since the car shaking incident, I am noticing some sensitivity to the fluorescents now, as well.

      When I do start this program, I will be doing it very cautiously, as disturbing my autonomic nervous system is a bit challenging, but maybe this will help me get some of my life back, even if I have to go more slowly.

      Thank you!

  25. Dear Dr Gillilan,

    I would love to begin your exercises immediately-

    Interestingly, last year I was diagnosed as having epilepsy, however, I believe the “brain overload” of my visual processing of movement is the true root cause of the problem.

    I am on anti-seizure medication, but often still experience what have been described as “epileptic auras” when in the exact situations provoked by your diagnostic tests. Rather than going into a sleepy, zoned out state (as it did in cars as a child), my brain now responds to these confusing signals with seizure activity.

    I can tick all the boxes for SSS, and would be interested to know if you know anyone who would be interested in helping me carry out the exercises in a scientifically rigourous manner. I am a musician, and somewhat lacking in those skills!

    I have a hunch that I am not the only case of this. Have you heard of it before? Do you know anyone interested in researching a case?

    I would love to discuss this further, and possibly team up with any interested parties before I enthusiastically “go-it-alone” from the youtube videos. (whilst still responsibly taking the epilepsy medication as advised by a doctor of course!)

    Thank you for reading, and thank you deeply for sharing your work.

    With best wishes,

    • I personally have no experience with SSS cases where epilepsy is involved, so am not sure how to advise you. You could try to find a physical therapist who does vestibular therapy or an OD who does visual therapy, to help you. Or it might be best to locate one of these professional schools to work with you in a research/educational setting. Since you can check all the SSS symptom boxes, it sounds like there might be potential for improvement for you, if you approach the therapy in the right way.

      • Yes, it is a slightly unusual situation, and it only my own hunch that makes my think that it is linked to the epilepsy. I am sure they are though, as the unsteady feeling sometimes “tips over” into the seizure symptoms in less than about 15 seconds.

        I’ll let you know how it goes! Thank you.

  26. The link to the manual does not work for me either. I just get directed to a default “Page Not Found” page from the Pacific University College of Optometry. Could you be bothered with checking up on this? It would make it a lot more manageable to try out this treatment provided the with the manual.

    • Just want to say that I succuessfully downloaded the manual from the FRONT PAGE (start page). The link on the “Treatment & Cure”-page does not work for me.

  27. Dr. Gillilan – thank you so much for the work you do! Your work has literally changed my girlfriend Danielle’s life, and we are both eternally grateful 🙂

    Let me preface with that she’s been diagnosed with Postural Orthostatic Tachycardia Sydrome, which makes standing, physical activity, or even just being upright sometimes incredibly taxing. Prior to finding your work, she did not leave the house at all (and I must stress… AT ALL) for about two years due to how intensely sick it made her feel. We weren’t aware at the time, but she had SSS.

    When I started to believe that her inability to tolerate car rides without feeling sick was not due to her POTS, I did more research. Because your information is freely available and easy enough to locate, we kept researching SSS. I was initially skeptical, because I didn’t initially believe it would be possible to retrain the ocular vestibular system as you show. Also, it’d be great if there was a Wikipedia article for this condition, since wikipedia it seen as credible (or credible enough) to laypeople such as myself. Thankfully, we went through with the therapy in spite of any reservations.

    I’m so grateful that you provide this website and the video tutorials as a public service; we followed them to a ‘T’. I can proudly say that she has overcome her SSS completely and is able to visit doctors now and have the improved quality of life a car provides. Your site has given her a 180 in life. Thank you so much!

  28. Thank you for writing about your friends success with the training and what a difference it made in her life. I had not heard of other SSS patients with POTS doing the therapy. The improvement in her life helps make this work even more gratifying.

    I would encourage others who do this therapy to write about their experiences. We can all learn from it. About 90% of what I know about the SSS, I learned from my SSS patients.

  29. Thank you for your work in the field. I am a Vision therapist and I have received my first official SEE sick (self diagnosed) patient and am wanting to be prepared to help this patient. I have been working with a few other patients that have symptoms and am attempting to alleviate the sickness they feel on a daily basis.

    I would love to have some advice with SSS. As a beginner learning to work with this sensitive issue, what is your advice in the beginning stages? Do you personally train people to specialize in SSS?

    Thanks again for your work in the field, such an under-noticed field.

  30. Congratulations on starting to train SSS patients. It is very rewarding work for both your and your patients. I no longer personally train therapists and doctors. However, if you thoroughly read ALL of the text at least twice and view ALL of the videos on this site, you should be fully prepared to start diagnosing and training SSS patients. Write again with specific any specific questions if you wish. One additional thought – I just learned about a new product called Motioneaze. It is applied in liquid form behind the ears and is claimed to prevent and stop motion sickness without side effects. You may want to have your patients give it a try while doing their therapy. It you or anyone else tries Motioneaze I would appreciate knowing what your experience is with it.

  31. Hi Dr. Gillilan,

    I’ve suffered with headaches/migraines for 10 years now and I know that some are caused by hormones, some light or smell sensitivity-so a variety of headaches causes. I have noticed that over the past few years I have a difficult time reading/studying, riding in the car while reading specifically, working on the computer, fluorescent lights drive me nuts, driving at night, and when shopping or in crowds I get dizzy and onset of headaches. Five years ago, I had lasik so have almost perfect eye sight. Five months ago I had a baby. When I returned to work two months later I’ve been having additional symptoms on top of my headaches: Spaced out/foggy head, feeling of detachment from stuff around me making it hard to focus/concentrate, neck pain, drowsy (esp. when driving), sometimes feel nauseous vertigo (off balance when I walk or am standing, dizziness, depth perception is off), and visual differences (shadows bug me, things around an object get fuzzy). I know some of these might be due to hormonal changes since I’ve had a baby, but while researching some symptoms I came across see sickness syndrome. Last week I spoke with an optometrist about eyegraines and now am wearing neurolenses to see if they give me any relief from the headache part of it. The treatment is new. Are eyegraines and see sickness syndrome related? http://eyebrainmedical.com/
    I live in the little state of South Dakota so I can only imagine there are no Dr. or Therapists who have a background in SSS.
    Thank you for your time.
    Dannica

    • Dannica,
      If you have had comprehensive medical evaluations by medical specialists, including a neurologist, within the last few months to rule out other conditions, you could do the following. Read and view all of the text and videos, including the patient testimonials, on this website in an attempt to determine if you think you have the SSS. Our imbedded videos are not playable currently, due to a technical problem but hopefully will be back on-line soon. In the meantime, go to Youtube and enter “Headache, nausea and dizziness from seeing motion & my cure with eye exercises”. Also, view the other videos relating to the SSS. After doing all of this, if you think you might have some form of the SSS, you could do the therapy on your own. Some people are able to. Of course as you suggest, you may have more than one condition to deal with.
      Write again regarding your progress and if you have specific questions for me to attempt to answer.

  32. I live in West Michigan and suffer from almost every symptom listed for SSS. When I found this website, it was such a relief to know there is a treatment. My question is where could I get this done and if it’s available in my area. Thank you so much.

  33. I am not aware of any providers for SSS therapy in your area and it is unlikely there are any. As of this date, not many people in the medical community are aware of the SSS. If you have not done so already, on this site, go to SEE Sick Syndrome, scroll down to and read After the Diagnosis. If you are unable to find a person to help you, you can do the therapy on your own. Not easy, but possible for some, especially if you have a supportive person at home to assist you. If other conditions have been ruled out and you are committed to getting relief from your symptoms, educate yourself by studying ALL of the text and videos on this site, including the comments from others. Then when the time is right, proceed with your therapy. Please write again if you have specific questions and to report your progress.

  34. I am curious whether this therapy will be a ‘cure’ for me or not. I had bilateral menieres as a child and then had ototoxic drugs to destroy my vestibular system. Neuroplasticity means I cope unusually well for bilateral vestibulopathy, but (?) Vestibular-ocular migraines means my eyes ‘shut down’ daily leaving me with static like vision. I fit all the symptoms as SSS except I never had travel sickness, & since the streptomycin ototoxicity I learnt to rely on fixed objects (eg car dashboard) & sensory feedback sitting down etc. Vestibular rehab has been okay but I am told it is more about me accepting I have little feedback from my vestibular system. Being profoundly deaf this means I have many reasons my eyes are firing on adrenaline. Reading, lipreading and sign language are regularly becoming difficult. Is Vision Therapy likely to help when I have deficits of vestibular and hearing that naturally means I will always over-use my eyes?

    Many thanks in advance

  35. First, I have had no experience with patients with your condition. I therefore, will not make any recommendations to you. However, with that said, it seems logical that there might be a slight possibility that doing the beginning exercises in a modified way could be of some benefit to you, especially if watching the motion of the ball or similar moving objects, or rapid eye movements provoke your symptoms. After reading all the text and viewing the instructional video on this site, if you feel you wish to give it a try, you might wish to proceed with caution and judge for yourself. Please post any experiences you have. Good luck.
    ____________________________________________________________________
    Note to other persons with similar conditions and to therapists who have treated similar cases, please post your comments in this section relating your experiences for the benefit of all.

  36. Hello doctor. I am suffering a lot from some sort of ear eye problem which my doctor is describing as meneires desease. But I am not sure of that.
    I feel trouble focusing on people when in some party where large number of people are there. Or in some group get togethers I feel weird looking at them. I have a feeling that whenever I look at very bright light, I feel uncomfortable. Even at the evening time when the sun is setting, I need glares to drive properly. I have a major car sickness. I have issues in looking at my phone specially while scrolling the contents. Last night I figure out having dissiness and feeling of pukish while watchin movie at the theatre. I cannot focus on things moving sideways. I feel heaviness in my head at times which goes away after shaking my head hard. Can it be SSS only. Please advice

  37. It sounds like you may have the SSS and It is possible that you could have that condition only. Most SSS sufferers can self diagnose themselves after reading and viewing all of the text and videos on this website. However, it is also possible for you to have more than one condition at the same time. Meniere’s and the SSS combined could severely affect one. Researching Meniere’s should be helpful.

    MD’s learn about Meniere’s as part of their training but not the SSS.

    One additional note. If you decided to do the Adaptive Dynamic Vision therapy and the symptoms were eliminated, that would give you a more definitive answer to your question.

    • Thank you sir for the reply. I want to start with the therapy but can you please advice me from where can i get the ball for the therapy? or should i start using a normal ball available at market easily.

  38. The Marsden balls can be purchased on-line from the Good-Lite Company. The instructions on how to make one yourself are on page 36 of my on-line manual.

    Consider experimenting with using ginger, Sea Bands, and/or Motionease when doing your training in an attempt to control symptoms of motion sickness.

    The videos which were previously embedded in this site have disappeared temporarily. However, you can find them on Youtube by searching for SEE Sick Syndrome, diagnosis and treatment. It is important for you to watch this video and read the complete website prior to starting your training.

  39. This sounds like me to the T. Just add mild neuropathy to right arm and leg, stuttering and progressive. Then we just may have found what has been wrong with me for the last two years. I would be severe on the symptoms for this.

  40. For the past 8 years I’ve been severely sensitive to fluorescent lighting and most electronic screens, which cause intense disorientation, dizziness, headaches, nausea, and a general “sick” feeling, sometimes after mere minutes of exposure. These symptoms also manifest when I’m in a busy area such as an airport, mall, bookstore, or sports arena. I have difficulty following moving objects that rapidly change direction, and difficulty reading without losing my place or jumping from line to line. I have fallen into the horrible habit of quickly skimming everything I read because taking the time to follow each line of print on a computer is too painful and ultimately disorienting.

    I’ve had neurological tests, optical tests, and blood tests; all have come back normal. I’ve never been diagnosed with anything from this.

    I am concerned that I may have something beyond SSS, as the disorientation seems much more severe than anything mentioned in the materials I’ve read about SSS thus far. I’m talking about not being able to form a complete sentence, certainly something close to an epileptic aura, the brain shutting down or pausing. But the triggers are the same as the usual SSS triggers, which leads me to believe your treatment methods could help me out.

    Has anyone ever presented to you with this sort of *severe* disorientation from SSS? How about patients who perhaps are strongly sensitive to fluorescent lighting but have no issues with incandescent light or sunlight?

    Thank you so much for your efforts and for providing this information for free. I have purchased a Marsden ball and will be beginning your treatment program as soon as it arrives, as I do believe I have SSS, perhaps in conjunction with something else. I will absolutely report back.

    • I agree with your self evaluation. Probable severe SSS with possibility of “something else”. I do recall at few SSS patients saying they felt like they had something like “brain fog” at times. It is important to FULLY understand your condition and ALL the text and video instructions prior to starting the therapy.
      Thank you for offering to report back. It will be important for others and me.

      • It’s been roughly a week since I started DAVT. I cannot begin to tell you how incredible this is. Imagine seeing the world through a fuzzy old technicolor tv for your entire adult life and suddenly you look around and everything is in 1080p HD. I must have developed some severe tunnel vision coupled with a strange, scattershot way of focusing on objects. This protocol seems to be rapidly correcting it.

        I’ve spent most of the past week just walking around looking at everything in awe: buildings, trees, people, animals, etc. I played pickup basketball this past Monday and I felt like a superhuman, saw everything before it happened, made incredible passes and shots. And just watching the game was overwhelming in the best way, being able to focus on people sprinting around without getting scattered or tunneled.

        It’s impossible to describe the mix of emotions that come with this. There’s a lot going on in my head but the greatest feeling, by far, is relief.

        I have a pretty long way to go with this condition. I’m nowhere near able to even do the most basic exercises without experiencing a lot of discomfort and failing to track the moving objects properly. The Marsden ball seems to skip or shudder in certain spots as it swings away from me. But to have results this quickly blows my mind. I’ll do this every day for the rest of my life if I have to.

        To think you both discovered and very simply cured this condition in the 1960s baffles me. It is 2015 and not one other specialist has had a clue. You are a genius and a pioneer. I will report back in a month or so when the therapy is finished. Feel free to use any of this as an early testimonial.

  41. Thank you so for your info sir, I have been suffering with inner ear issues. My vestibular test dint come normal, tried vestibular excercises for couple of months. Didn’t help. vestibular therapy excercises made my symptoms worst. ENT doctor told that there is no medication and sometimes it happens because of the virus. Since then i started avoiding all the electronics. Recently i came to know that my symptoms matches with SSS. But my question is that SSS causes sound sensitivity of my ear? or inner ear issue is making my eye sensitive(headaches, dizzyness, etc.) and sound sensitivity?. I am from mississauga, ON. Is there any therapist available to help me with the problem. Please help me. Thank you.

  42. There is a slight possibility of a relationship between visual and auditory sensitivity in a few SSS cases. However, it sounds as though you may have both a vestibular condition and possibly the SSS at the same time. Since your vestibular condition hasn’t been treated successfully, and you are convinced you have the SSS, you could do the DAVT to treat it. Not an easy task. I know of no one in your area who is familiar with the SSS. Read ALL the information on this site then search for a professional to assist you and direct them to this site for guidance. The provider who assisted you with your vestibular exercises may be the best person to help you. As a last resort, you could do the training on your own.

    • I met an optimetrist in my area who knows about SSS. Did my eyes test and gave me couple of options. 1)prisom glasses, 2) vision therapy. First i am going to try the glasses which i will get in next week. All the time i was thinking that something wrong with my ears and not eyes. After the test i am noticing that all the symptoms are with eyes. I would like to provide the doctor name in my area for others benefit. Her name is Dr Fallon patel. Feeling realxed and can’t wait to get back to my normal no headaches,dizzyness n pain free life. It’s all because of the information here.

  43. Having just got a Marsden Ball from the States, I started the exercises last week. Can you tell me if I need to focus on and follow a single letter on the ball, and wait until it reappears, or switch to another letter as it swings out of view?

      • Thank you. The exercises are having a much greater effect on me than the ten weeks’ vestibular rehab that I did last year, which I think is a sign that SSS is indeed the problem.

        • Thank you for reporting your progress. I agree that if you notice improvement in your condition after doing your training only a few days, it is a strong indication you actually do have the SSS. Later, if you completely eliminate your symptoms, your self diagnosis is confirmed. Remember however, you could possibly have other conditions, as well. I encourage you and all others who are training to report your progress in this section. In that way, we all can learn from your experiences.

  44. I appreciate for your fast reply. Your research gave me new hope. Vestibular dysfunction impacts on balance system right, but i never experienced such. As per your comment vestibular was not treated successfully means i should have tried for more months? But my ear and eye became very sensitive, even by talking on phone also started making me get dizzyness, neck movements triggered muscle problem in my neck. So that i couldn’t continue those exercises any more. When i went for vestibular test, my left ear din’t respond properly to the water test. CT scan and MRI of brain were normal. One of the ENT in back home said that it is vestibular migraine. In that case is there any possibility of having both vestibular and SSS symptoms? I am looking forward for symptoms free life and i really want get back to my work. What would you suggest? Your info is the only hope for me right now.

  45. Hello Dr. Gillilan,
    I have 2 problems possibly related to SSS. For as long as I can remember I have been unable to read in the car without getting a headache. My other problem is related to smartphones. If I use a smartphone for even a few seconds I seem to get some eyestrain and a very bad headache that can last for a few hours. Both headaches (from the car and the phone) seem to be similar.

    My inability to read in the car without a headache hasn’t really affected my life much, but the fact that I cannot use a smartphone has been a major inconvenience for me. I own an old cell phone that came out in the year 2000 with a black and white display. That phone does not give me any problems. I am desperately trying to adapt to using a smartphone but I get headaches the whole day. The problem is the type of light that the phone emits. Note that TVs and computers give me no problems. Also I have seen an eye doctor and he could not figure out why I’m getting these headaches.

    What do you think my problem is? Do you feel that I have SSS? I live in the middle east and would doubt that there would be any practitioners here involved with SSS, but I’m willing to do anything at this point to stop the constant headaches from my smartphone.

    • After reading the list of SSS symptoms, you can probably self-diagnose yourself. If you think you do have the SSS, that is probably the reason for your discomfort. SSS people are adversely affected by certain light sources and visual motion. Smart phones can be too bright, and there is exaggerated visual motion when swiping/scrolling. You can try reducing the screen brightness or wearing sunglasses and try to look away and/or reduce the speed of your scrolling and swiping actions. If that doesn’t work, doing DAVT would most likely solve your problem. You then should be able to read in a car, as well. Please let me and the rest of the readers know about your progress.

  46. I was thinking I had SSS. I have every symptom. This last week I got to go see a neurologist at Indiana University Heath Neuro Clinic. I found out I have a Pineal gland cyst. and Cerebrovascular Disease. They said it is the cause of all my problems. I wish it was SSS.

  47. Dr Gillilan, do you think that astigmatism has some association with SSS? I was on the point of having intraocular lenses when I spotted this site, and am now wondering if I need to take this step. I certainly have problems wearing reading and distance glasses, and am not really comfortable with them, as even the slightest movement seems to provoke symptoms. I daren’t even think about multifocals.

    • You didn’t say if you think you have SSS or simple hypersensitivity to visual motion. (SSS people have HVM plus hypersensitivity to light) So, I am assuming you have one of these. Glasses exaggerate the visual motion you see, when you move your head because the lenses are some distance in front of your eyes. The stronger the lens prescription, the more motion is observed, with any kind of correction, including astigmatism. This could be the source of your problem. If the corrective lenses are placed directly on (contact lenses) or in (intra-ocular) the eye, there would be no observed visual motion and in theory, should eliminate the discomfort. If you need a different prescription for near vision, you would still probably have to wear reading glasses over your lenses. Again, if you identify with many of the SSS symptoms listed on this site, doing the DAVT would most likely reduce or eliminate your symptoms associated with wearing glasses. The training does take a lot of self-motivation and perseverance, however.

      • In answer to your question, I fall into the ‘moderate’ level of SSS from your symptom list. Never having been a good traveller, I have found it increasingly hard to tolerate very bright light, especially when travelling by car at night, and also sunlight strobing between trees. It’s often more comfortable to wear sunglasses when a passenger, even on cloudy days. The unwise practice of standing at an open photocopier probably hasn’t helped, along with working over a lightboard for some years, which I’m regretting now.

        Zigzag patterns, crazy paving and stripes are uncomfortable to look at, and that awful feeling sitting in a station when you’re not quite sure which train is moving.

        I am increasingly uncomfortable in social situations, in crowds or talking to people standing close to me – my eyes don’t seem to know what to focus on and I’m always blinking and readjusting my gaze. Walking in the street is a challenge – I don’t feel confident at all. Shops are a nightmare. Using a computer, I seem to be able to tolerate rapid vertical strolling better than horizontal, which makes we very uncomfortable. When I’m doing the pencil exercises, the vertical ones are far easier for me.

        • Sandy I hope you don’t mind me replying to you. But I see you are in the UK. I am 27y/o female suffering from SSS and would love to talk to someone else about it. If you are happy to talk with me for 10 minutes or so that would be wonderful. My email is klloyd00ATgmail.com
          Many thanks

          Kate

  48. The exercises certainly provoke the symptoms much more markedly than the vestibular rehab ever did. I have a left beating nystagmus, which I think may be making the pencil exercises on that side more challenging. Apart from that, the pencil exercises are getting a bit easier. Ironically, the ball exercises seemed easier to start with, and now make me quite dizzy while I’m doing them, so I stop for a moment or two to regain equilibrium. I stand at arm’s length from the ball.

    At the moment, after 12 days, I’m managing about 20 minutes each day, and I do the exercises between 4 – 5 pm. My husband helps by telling me what to do as it’s easy to lose track when you’re concentrating so hard. It seems easier to keep moving around after the session, which helps with the dizziness. Although I recover quite quickly, I am finding that I get a kick-back the next morning and my eyes are certainly feeling the strain.

    I am not expecting miracles here, just to be able to travel comfortably would be a great benefit, and that’s what I’m aiming for.

  49. Hello Doctor,
    I have vestibular damage in my right ear, they don’t seem to think its bppv. Anyway, they believe my eyes are trying to overcompensate for the damaged inner ear. I can’t watch any movement..cars, trains, scrolling on computer, people walking and so on. My PT thnks I should be walking heal to toe with head up, down, tilted and side to side, all with my eyes closed! I don’t get that concept. Do you think I could benefit from your exercises? Please respond, Ive been suffering for a long time. Thank you, Julie

      • Sorry, One more thing.. It’s only my right eye that I feel the strain in. Everything is only on the right side. Ear and eye, I even feel a facial tightness on right side when eye gets strained and fullness in ear.

  50. Sir,I want to know one thing. Are there any side effects as well of doing this exercise??? I hope it wont make my vestibular system to make the vertigos etc. Coz when I am doing the circular thing with ball, I feel that vertigo thing. So I hope by continuing the process I dont develop the vertigos in normal routine life.

  51. I have no personal experience, with a case exactly like yours. However, based on your symptom producing reaction to visual motion, I would think there is a chance the DAVT may be beneficial to you. The exercises that is, which involve moving just your eyes. I would be cautious about doing the head and body motion procedures because of your vestibular history. Ask your PT about that. It appears you are already doing some of the exercises now. As you must know, the exercises provoke the symptoms you talked about. You should be pretty much “back to your normal” within an hour after the training unless you have been overtraining. It is very unusual to have the training make the symptoms worse for a few days, but it has happened. (Dr. Scott Pengelly was the most severe case of this type. Watch his video “Headache, Nausea, Dizziness from Seeing Motion & My Cure with Eye Exercises” on the home page). To my knowledge, I have never had a training patient make themselves worse permanently. It would probably be a good idea to have your PT study this site and help you with your training. Please report your progress so I and others can benefit from your experience.

  52. Hi. I was wondering if on top of DAVT if you’ve known anyone to use full spectrum lamps/natural spectrum light sources and if that’s been helpful as far as the sensitivity to light goes in causing dizziness, etc. Thank you. Dannica

    • I am not aware of SSS patients using full spectrum lamps to improve visual comfort. However, it seems possible it could be helpful and worth a trial. Standard cool white fluorescents tend to be more irritating to SSS people than incandescent lamps, which put out a “warmer” light. Also, the AMOUNT of light needed for close work varies with individuals. When you are using a reading lamp the brightness can be easily adjusted by varying the distance of the lamp to the object you are viewing. Most untreated SSS people find it more comfortable to wear a visor in brightly lit places, such as in office type settings with high level ceiling light, as well as outdoors. Please report your experiences here so we may all learn from them.

  53. hello, This sounds in a number of points like something have had for quite sometime. One of the strangest symptoms is when I watch very rapid movements. The first time I was actually shocked by it happened when I was sat by a river watching the water (very fast flowing water) and talking to somebody. I stopped watching the water and turned back to look at the person. And about a minute of so later some really strange happened. it was as if a film unrolled in my head and this was also at that moment all I could see of lokking at the water and then the view as i turned away from the water and followed my vision back up along the riverbank until I was once again looking at the person opposite me. This “film” symptom hasn’t happend very often over the years but it is very unnerving when it does. Also, I dance Tango and am getting more often that I have to close my eyes otherwise I cannot handle the periphery “spinning” and get ver dizzy. This morning I happenend to also see a film in a planetarium and now 2.5hrs later I am still slightly quesy and dizzy. Could this be Seesicksyndrome

    • It sounds like you could have the SSS. Almost all cases have certain common symptoms, but some have additional ones, as well. If you read the long list of symptoms of the SSS, you should be able to determine if you have it or not. Keep in mind however, one can have more than one condition at the same time.

  54. PROGRESS – THREE WEEKS ON
    Progress is slow, but there. The exercises are challenging, but I’m getting better at the pencil exercises, although we’re only on the starting stage still.

    The swinging ball is getting easier. As catching slight movement with my eyes often makes me feel queasy, I wonder if I should stick with the ball until it stops swinging, or stop just before as I am doing now. It is much harder swinging from behind my ears as my field of vision appears to be reduced on both sides, although my optician hasn’t said anything about tunnel vision, I feel it’s there, a bit like a camera lens narrowing. Bright light still bothers me.

    I ventured into the town and felt off balance when I got out of the car, but it wasn’t parked on flat ground. I often feel off balance when I’m not standing on absolutely flat ground and am very conscious of it sloping away from me.

  55. I think it best to re-swing the ball before it slows down to a low swing. That pushes you a little more and makes better use of your time. Most patients are beyond the beginning stage in three weeks. It is normal and expected to develop symptoms while while doing the exercises, and they should subside within 30 mins. or so after each session. If there are minimal or no symptoms during the sessions, you are not pushing yourself hard enough and therefore probably not progressing as quickly as you should. Strangely, functional tunnel vision, which is part of the SSS for some, is not detectable with standard peripheral vision testing techniques. The sloping ground symptom is not uncommon in pre-training SSS patients, but goes away with successful training. Is your doctor or therapist guiding you in your training?

  56. Dear Dr Gillilan,
    Thank you so much for your advice, and from what you say I think I may not be challenging myself enough. I’m afraid I haven’t been able to locate anyone in this country who specialises in this treatment, so I’m doing the exercises with the help of my husband – invaluable as I find it confusing trying to think straight.
    He also read through the manual thoroughly, as I tend to read things in blocks, rather than line by line. I have just read through the first series of exercises again more carefully and think I can see where I’m going wrong. We are currently as far as Page 24 (Convergence Push Up). I do the pencil exercises first, then the Marsden Ball. In total, I’m spending about 20 minutes a day overall on the exercises.

    The saccadic exercises, particularly on the left side, are far more challenging than the vertical. Double vision is a problem when the pencil is at the far left field of my left eye (the one with the beating nystagmus).

    I am not doing the training with glasses because I need reading and distance glasses and don’t have varifocals. So this may give me a problem when it comes to reading what’s on the pencils. We may have to improvise with letters stuck to a paintbrush or similar.

    I feel momentarily off balance when doing some of the exercises, but am OK after a minute or two looking at something else. Sometimes I feel a bit dizzy the next morning.

    I have been taking things slowly because I have had neck problems in the past.
    I really appreciate that you have made these exercises available online. Doctors here don’t seem to know about SSS at all.

  57. What country do you live in?
    It is VERY important to have a dedicated person to help you with your training. In addition to reading the manual, you both need to watch the top two videos on the home page of this site. Then re-view the 53 min. top instructional one as needed. It should make the manual easier to follow.
    I am not concerned about the your double vision on one side. It’s your eye movement that counts.
    You may want to try using the glasses that seem to work the best if that improves your vision some. You can just look at the tip of the pencils if the letters are not visible.
    Because of your history, use caution in moving your neck. Your eye movement is more important.
    Most patients get the best and fastest training result by training a total of maybe 30 to 45 min. per day. This can be divided into two or three sessions if need be. You may wish to take one or two days off per week.

    • Dear Dr Gillilan,

      Thank you for coming back to me so quickly. I hope I haven’t misled you – before embarking on DAVT we both studied the videos, which were very helpful. Working together from home we are able to do the exercises at the same time each day, so that isn’t a problem at all. Last year we worked through ten weeks’ vestibular rehab, overseen by a therapist (via an ENT surgeon) here in the UK, but with only two visits to their office, so I think we’ll be fine. In the three weeks since we started, I have had two days ‘off’. I have talked with my physiotherapist about the exercises and she is quite happy for me to do them, and interested to see how I progress.

      I will keep you posted as to progress, and your help is very much appreciated.

  58. I am believing that this is what is affecting me. I have been to every type of doctor and finally I went to my ophthalmologist today.
    He is not familiar with NOVD but said I should pursue this by contacting you.
    I am in Florida and cannot find anyone that works with DAVT.
    The reason why I think I have it is because :
    My laptop makes me absolutely off balance.
    When I drive in a car at night and headlights sweep by me it sets me off
    I prefer to shower without light in the morning
    I cannot read in a car at all
    When I fly and there is turbulence I need to shut my eyes to prevent nausea
    Recently I went into a very busy restaurant and all the movement and noise set me off and I needed to leave
    Left to right movement in front of my eyes bothers me

  59. Dr. Gillilan, I just found your site today and am on the verge of tears after watching the 11 minute video with the woman who was cured. I have been disabled for over five years with what seems like it may be See-Sick Syndrome. Dozens of doctors, six months of eye exercises for convergence insufficiency, physical therapy, chiropractic, innumerable alternative therapies, test after test that show minimal issues (VNG and tilt table), and I am still suffering more than ever. Dr. just tried meclizine and that just made me worse.

    There is no provider in Florida. II am so disabled that I cannot read the 44 page manual without spiraling into a huge flareup. I’ve had to give up writing entirely and working on my computer. The tablet is sort of ok.

    Spinning inside my head 24/7/365. Made much worse by computer, reading, driving, big box stores. If I push it by doing any of those activities, I get a huge flare up of the spinning sensation with palpitations, heat rising, and a migraine along with tremendous weakness. Rarely, the room spins. Mostly just in my own head. So closing my eyes doesn’t help. And I have the movie theater problem too!

    The girl in the video described a bruised sensation. Mine is more like pressure builds up behind my eyes when I push through and it feels like my head will explode if I keep looking at the screen, etc.

    I really want my life back.

    Can you just please tell me where to buy the equipment (does it have to be the official Marsden ball as they don’t sell to patients). Can I figure this out from the 58 minute video since I cannot read the manual?

    Or does it seem that if the convergence exercises didn’t work, this won’t either?

    I really want to be able to write again. Thank you for your amazing work.

    Susan Bilheimer

    • It does appear likely you have severe SSS, especially since testing for other conditions has been negative. I do not recommend severe cases attempt do-it-yourself therapy unless there is just no other alternative. There are optometrists in your area who provide standard vision therapy, and you may have done your convergence therapy with one. You could start with that person, providing them with the information on this site and asking if they would be interested in learning about it and helping you, and possibly many others, with the therapy. If they are not interested, ask for a referral to an OD or vestibular physical therapist who might be. I would be willing give my input to a doctor or PT who would contact me. As you know, few doctors are aware of this not-uncommon condition and its treatment and that they, as well as SSS sufferers, could profit from their getting involved with it’s diagnosis and therapy. The fact that your convergence therapy was not successful does not rule-out the possibility you could be successful with DAVT. Again, if it should come down to an absolute last resort, you could do the training yourself. The Mardsen Balls can be purchased by anyone at the Good-Lite Company, and probably others. I checked with them earlier today on this. You would almost have to have a dedicated “helper” to do this. They could read the manual, which is a must for you, for one thing, as you go through the training. Just watching the videos is not enough. In addition, you can have your iPhone, iPad and Mac and possibly with PC’s, read the manual and other written text to you buy following the instructions in the accessibility features. (Siri will read many things for you as well, including text messages and emails. You can also, dictate these things to her instead of typing) One reason I discourage severe SSS patients form doing their own therapy is if they are not successful and discouraged, they would be less likely to be willing to give it a go with a professional later on. I see you are communicating with other possible SSS people and I encourage that for more reasons than one. It would be good to form your own SSS support group. There are lots of you out there who think they are the only ones with this condition. Consider also, using the SEE Sick Syndrome Facebook page, which was started by someone unknown to me. Don’t give up!

      • Dr.Gillilan,
        Thanks so much for responding so quickly to Susan.
        As you know she and I have had initial contact regarding this and I agree that I would rather do the therapy with a therapist or Dr.
        If I can find someone in South Florida to work with me may I please have them contact you if they need to?

        Thank you,
        Nancy

        • I welcome the opportunity to respond to any and all OD’s or PT’s who contact me. In addition to the resources listed on this website, such as covd.org, you might try going to vestibular.com for names of PT’s who specialize in vestibular rehab. in your area. The therapy they provide has some similarities to DAVT.

  60. Susan,
    I am in South Florida and I also researched and there is no one in Florida.
    I am still going from Dr to Dr
    I have the same symptoms as you.

    Nancy

  61. Dear Dr Gillilan,

    As you know, I’ve had to take it slowly because of my neck, and we’ve had a bit of a hitch in the last week because of a nasty virus, causing me to miss two days in a row, something that does make a noticeable difference when you start again. Also viruses tend to make me feel off balance, which makes progress tricky to assess.

    At the six week mark now, and just started the swaying with the ball exercises and focusing on the pencil, then 11 ft away, so not quite through the programme. Some improvements in that I am now able to walk upstairs holding two cups of tea, something I couldn’t do before, and I’m getting better with steps generally.

    I haven’t been able to ride as a car passenger for some time, but a very short journey yesterday was OK. Not quite brave enough to try a country lane yet, I’ll give it another week.

  62. Dr i get severe headache when I see alot of people. example is when am in a market. also i can’t read in a car, look outside in a car especially when there are trees outside, i can’t look backwards when a car too. i get dizzy, nausea, shaking, sweating, but each time I take in sweetener, i feel a bit okay. my question is
    1. is my sss associated with hypoglycemia?
    2. why do i headache when I see alot of people.
    Note: am not a diabetic patient.

  63. 1. I copied the following from the Q&A section of this site to answer your question. ” In addition, the stress of SSS apparently produces a body chemistry change in some patients causing hypoglycemia (low blood sugar). If you have this condition, you should limit your consumption of alcohol, sugar, and caffeine and eat frequent meals and snacks. Standard blood tests will not detect this condition. However, if you have lightheadedness, headache, or depression when you haven’t eaten on time, you might have low blood sugar at times. High consumption of sugar may give short-term relief but the blood sugar can then go crashing down to produce even more severe symptoms than before. Reasonable comfort can usually be achieved with a proper diet”.

    2. All who have the SSS, are extra sensitive to seeing motion and moving their eyes. When you are in a group, the people may be moving, to some degree, or using hand gestures, both of which can be the cause of symptoms in more severe SSS persons. Also, you are probably looking from one to the other and your eye movement may be causing your headaches. You can find a more complete explanation by reading and viewing all of the information on this website.

  64. Would it be possible to just wake up with this condition one day? I would say I have always been a little nauseous while riding in a car and would get head pressure after a day of shopping.. I woke up October 2014 feeling off balance and sensitive to light.. I started noticing I wasn’t sensitive to all visual motion in front of me. it makes me feel as if im rocking ( like my brain doesn’t understand its the object , person etc . moving instead of me ) doctor sent me for mri and it was clear . said it may be migraine related.. I just kept saying it has something to do with my eyes. I feel hopeless because its constant :(… I would also like to mention I have very poor eye sight in on eye and great vision in the other. I was told to wear glasses when I was young but they made me so nauseous I didn’t. I get head pressure with the motion sensitivity. Just looking for hope that maybe this is the answer. I’ve been so worried that something major is wrong. Thank you

  65. I do not recall knowing of anyone “just waking up with this one day” with the SEE Sick Syndrome, but it has been known to come on suddenly when associated with head trauma. I suspect that most of these cases had a history of motion sickness prior the the trauma. I do not know the reason for the sudden appearance of your symptoms. You may want to consider a second neurological evaluation. If other conditions are ruled out and you think you have the SSS, it seems likely that the Dynamic Adaptive Vision Therapy, would be helpful to you. It your therapy is helping, you should notice some progress in the first week or two. However, if there is no noticeable progress during that beginning time, your chances of improving beyond that point are not good. Keep in mind it is possible for you to have more than one condition affecting you at the same time. If that is the case, and you can cure, or at least reduce the effect of one of the conditions, it should be worthwhile.
    Please post a report of your experience in order that we may all learn from that experience.

  66. The SSS method is taught at Pacific University, College of Optometry in Forest Grove, Oregon. It is possible that other optometric and physical therapy schools could be teaching it, as well. There are several national optometric lecturers who discuss the subject but I am not aware of any specific training courses for certification at this time.

  67. My daughter,17 years old, has eye tracking, accommodation and focusing problems and is undergoing Vision Therapy. Whenever she does the eye tracking exercises she has seizure-like symptoms with uncontrollable body spasms eg. neck jerks sideways, toes point, upper body jerks back and forth and muscle weakness where she drops to the floor but recovers within a few minutes. A Video EEG ruled out Epilepsy. She has all the symptoms of SSS and is described as severe.

    Is there anyone else who is experiencing similar reaction especially to seizure like symptoms?

  68. I have not heard of this reaction to vision therapy procedures. However, I do recall a few cases in years past when patients had a similar reaction to having an instrument touch their eye.

    You may wish to also, post your inquiry on the SEE Sick Syndrome Facebook page.
    It was initiated by and and controlled entirely by people with the SSS.

    I would recommend your therapist check-out this complete website, if she or he hasn’t already done that.

  69. Hi Dr Gillilan,

    I experience many of the symptoms of SSS but it only started about a year ago and I am 27 years old.

    With regards to the headaches, I have a throbbing at the back of my head which is constant and gets worse if I bend over or turn my head quickly. I have not had any relief from this pressure in the back of my head since and a stiff neck. Had an MRI and blood tests all ok.

    All my other symptoms are in line with your past patients except for the fact that my headache and dizziness is constant, even when I go to bed at night and wake up in the morning. My question is in regards to your past clients, have you noticed that they get his head ache and dizziness constantly 24/7 or does it only come about when they bend over or are subject to visual motion?

    Also I never use to notice any real symptoms of motion sickness until 1 year ago so I’m not sure if this rules me out for SSS?

    Thanks
    Steve M

  70. Some SSS people notice symptoms only when during certain activities but others have them 24/7, even for years.

    The classic SSS patient has a life long history of some motion sickness – can’t read in a car, go on or watch carnival rides, etc. – but a few others develop the condition in a very short period of time.

    Of course, it is always possible to have more than one condition at a time. If you think you have the SSS and do the therapy and the symptoms are reduced or eliminated in a few weeks, that, in it’s self, is diagnostic.

    Re-read and view the letters and videos from former patients who’s primary symptom were headaches. They tell best.

    • Hi Steve. I am also 27 and also have symptoms 24/7 and would like to hear about your progress and connect with others who have this condition. My email is klloyd00ATgmail.com if you are up for talking about it that would be fantastic. I am also intrigued about your progress with treatment. Kate

  71. Hello, Thank you for the work you do. I believe I have been experiencing SEE Sickness since a child (mild to moderate) and as an adult, in the past three to four years, it has reached the severe level. I have also recently been diagnosed with binocular dissonance after years of trying to find a provider that could determine why I was seeing things the way I am. I recently started to wear prisms in my glasses. I am hoping that this will help. I am still struggling with balance issues- especially when standing still or talking to someone, in grocery stores, crowded areas, or places that have printed carpeting. I was wondering if your treatment would also work if I have binocular dissonance. Thank you.

    • I know very little about binocular dissonance and am unaware if any other SSS patients had been diagnosed with it. With that said, it seems logical that the therapy would probably be helpful to you. You might ask the optometrist who diagnosed you as having BD to provide your therapy for SSS.
      Pease report your progress on this site.

  72. So pleased to have found this website and possibly an answer! What an incredible service you are providing people here by answering their questions. Fantastic! I’m afraid I have quite a few questions!

    (I’m Kate, 27 from the UK)

    It started when watched a movie at the cinema, the film was constantly going in and out of focus and was very shaky etc. This gave me a instant headache and nausea/motion sickness feeling at the time, and then I napped and the feeling went AWAY.
    However, one night a few weeks later I was just THINKING about the film again, and this recreated the nausea feeling, and since then the nausea when reading, looking at anything moving, watching tv or films, smart phone scrolling, sensitivity to light etc. has not stopped. What confuses me is how I was able to seemingly just THINK about the film and all the sensations of nausea and the symptoms described on this website appeared instantly, and I have not been able to get rid of them! (despite trying not to think about them- although I notice it is better if I am distracted) 1. Does this happen with SSS?

    2. Also- again if I just THINK about a moving object- for example a ball bouncing up and down, this also creates dizziness/nausea for me, does this happen with SSS? Or is it only caused by something actually moving in front of the eyes, and not imagined from the brain.

    3. When I close my eyes I also feel as though I am watching movement and light, as though my mind is still dizzy even without the movement stimulant. Does this happen with SSS?

    4. I did also come down with two cases of a nasty flu before I watched the movie, and a few weeks afterwards- do you think this means it could be some kind of virus/infection and not SSS? I have NO other symptoms like earache and feel fully recovered from the flu symptoms. It could be months before I am able to see an ENT specialist in the UK, so I am wondering if it makes more sense to try SSS treatment first.

    5. Before all this happened I was studying animation at college, I have had to drop out because of this nausea. I want to be a filmmaker! Film is my life, and now I can’t even look at a computer screen without feeling dizzy! It’s really like my life has been lost. Do you think if I do have SSS, that with training I will be able to watch/enjoy/make films again?

    6. If someone was to show me an image of a blurred still photograph, that would make me feel nausea- do out of focus images have a connection with SSS?

    7. Finally, do you know of anyone based in the UK who has done the training who can help me? I think as my case of SSS (if that’s 100% what it is) feels pretty severe so I would like to see someone properly trained.

    Once again thanks so much for this website , apologies for all the questions.

    All the best,

    Kate

  73. I will attempt to give you some useful information in answer to some of your questions.

    I do not remember having a SSS patient tell me the symptoms developed when they were just thinking about an activity involving visual motion. However, that does not mean it might not have happened to some. The power of suggestion can be powerful and could be coming into play. Some SSS patients have symptoms such as nausea, dizziness, headaches only when observing motion or rapidly moving their eyes. Others have the symptoms constantly over a period of hours, days, weeks or years, regardless of the what they are doing at the time. So yes, SSS people can still have symptoms with their eyes closed.

    I am not aware of a correlation between illnesses such as the flu and the SSS. However, prior to getting the flu, if you could read in a car and had none of the other symptoms, it sounds like there could be a link, somehow. I do know that if one is in a weakened state generally, SSS symptoms tend to be worse and the training is less likely to be successful.

    You obviously have developed a hyper sensitive reaction to visual and eye movement and you may have the SSS. If you think you do have it, doing the therapy seems like the logical way to go. I do not know of any SSS therapists in the UK, but suspect there are some. You could do some checking on that yourself by contacting some offices who provide general vision therapy and ask for their recommendations. You could also, contact an association of eye doctors for their recommendations. Please advise me of the results of your search. It is best to have professional guidance with the therapy but if that is not possible, some can self train, but it is much more difficult. You and a family member would need to really study this website. Your helper could help lead you through the therapy. I see no reason to wait to start the therapy. You should know within a week or two if it is working.

    Please report your progress here. The more we hear from patients with this condition, the more we all learn how to deal with it.

  74. I know 100% that I have this condition. Can anyone recommend a doctor in PA that provides treatment or therapy outside the Philadelphia region?

      • Ok…the youtube video was not populating in my Internet Explorer, but I got it to work in Chrome. However, below the video the following link does not work:
        “The details of how to do the DAVT are explained …the 53 min SSS Youtube video.”

  75. Thanks for your comments. “the Details of how to do the DAVT – – ” video in the grey box is a duplicate of the “SEE Sick Syndrome – diagnosis & treatment” video in the left hand video column. So you are good with either one.

  76. Hello. I am almost certain I have SSS. I’ve been a chronic motion sick person. I cannot carpool and if someone else is driving, I have to take motion sickness medicine. In February 2016, I became very ill and the ER diagnosed me with vertigo. My family physician also thought that is what I had. I was referred to an ENT who did testing and determine I had no inner ear issues. As I was not getting any better by March, I was referred to another ENT who said I had vestibular neuritis. I did 6-8 weeks of physical therapy to gain my balance back. I am still experiencing some debility issues such as: not being able to read a book, use my smart phone, work on a computer. I can barely eat dinner with my family as the excess movement makes me dizzy and nauseous. I also lost my job because I was unable to work on the computer. It causes me to stay in bed away from movements of the world for days and days. It’s essentially ruining my life. I have never had dizziness problems like this before until I had vestibular neuritis. I am going to the University of Michigan in July. But I have a feeling they’ve probably never heard of SSS, but I’m almost positive that is what is going on. Is there a correlation between vestibular neuritis and SSS? I did some eye therapy when I did physical therapy but nothing like the therapy on this site. I am so tired of feeling sick all the time and not having anything to help me feel better. I tend to feel better at night when there aren’t bright lights or other movements. The only odd ball symptom is once my symptoms are triggered, I have a sensitivity to sound. Is that related? I’m at my wit’s end and can’t find a close provider who can help. Any ideas if Michigan has providers who treat this? My PT had never heard of SSS. But I need to work, I can’t afford not to.

  77. I have no experience with patients diagnosed with vestibular neuritis. A few of the symptoms of VN are similar to SSS, but it sounds like you may have had, as least some degree of SSS for a long time. The only OD I know of in MI, who is proficient in diagnosing and treating SSS is Dan Fortentbacher, OD FCOVD, of St. Joseph, MI. There very well could be others, however. If St. Joseph is not near you, you could ask Dr. Fortenbacher’s office who they would recommend closer to your home. Travel when you have SSS is not fun, as you know. The other options are to have a vestibular rehab. PT help you. Maybe the one you worked with already, even though they had not heard of the SSS. By carefully studying the information on this site, they should be able to follow it and help you. It is close to what they normally do in some ways. As a last resort, you could become your own expert and train yourself, with the aid of a family member who is willing to help you. From what you have written, I would think you could be helped to some degree. Ask additional questions if need be and report your progress, so we all can learn from your experience.

  78. Dear Dr. Mr Gillilan

    I am a 24-year old girl from the Netherlands (so sorry for my bad English writing skills). I lived a happy and busy student life. But last February I got the flu and after healing I stayed very dizzy, which causes nausea and headache. It has the same feeling as being car sick (I am always carsick when I am in a car, so I recognize the feeling). I notice that these symptoms appear/get worse when I watch TV, try to read/study on my laptop and move my head a lot. And when I come in a busy situation, like walking through the supermarket, i get a ‘spacy’ feeling for a few minutes. The symptoms seem to be the worst in the day-time and seem to fade in the evening.
    Now four months later I still have these symptoms, sometimes heavier and sometimes milder. Unfortunately I had to quit with my study at the University because it is impossible for me to study (reading/ watching to the screen aggravates the symptoms).

    The family doctor thought my vestibular system is very sensitive and could be injured. She said it will be over in the next few weeks if I should take some rest. However this was not happening. In the past months I visited two ENT-specialists and a neurologist for further research. But they can’t find any cause for my symptoms; my blood results are perfect, my hearing is perfect, my vestibular- and neurological system works perfect and I don’t suffer from hyperventilation.

    I was very desperate; these complaints constrict me very much, but the doctors can’t find any cause. I could’t accept that so I searched on the internet the last weeks to discover what I might have. Finally, I found your site http://www.seesicksyndrome.com a few days ago and after reading the information, I recognized almost all the symptoms in the symptom list. So I am convinced now I have the see sick syndrome!! And this is such a relief for me!! It gives me hope to cure.

    On this website I read that there are just a few doctors and optometrists familiar with this syndrome and no one of them live in the Netherlands. So I think I have to do the exercises in my own at home. I made my own Marsden ball and yesterday I started with the therapy. Unless the clear and extensive description on your site, I still have a few questions for you,

    1. Have you ever heard the SSS appears/get worse after a flu?
    2. When I do the exercises with my Marsden Ball, the ball constantly rotates. So during these exercises I constantly have to concentrate on a new letter (for every two/three seconds). Is this okay?
    3. Does wearing contact lenses influence the therapy? (I wear them during the exercises).
    4. I would try to study for a hour each day (at least if this is possible). Is this a problem or is it better to give your eyes as much rest as possible for the rest of the day during the therapy?
    5. Do you advise me to go to a ophthalmologist here, unless they have no experience with the SSS?
    6. Maybe you can give some traps for the exercises where I have to look out for?

    I would appreciate it if you could answer my questions,

    Thank you in advance!!

    Lisa

    • Hi Lisa, i’m 27 from the UK, mine also started after I had the flu (although I never got carsick before) and I have also had to drop out of university because of the syndrome. I haven’t started treatment yet as I have some other health issues, so am waiting to start the treatment/exercises. But I would be interested in talking with you as we seem to have a similar case of the syndrome. If you are up for emailing or skype phoning with me, let me know. It would be nice to connect with someone who understands. And I would be interested to see how you get on with the exercises. My email is klloyd00ATgmail.com . Wish you the best, Kate

    • 1. I have do not recall hearing that the symptoms worsened after having the flu, but it seem logical that this could happen.
      2. Fixate on a new letter as the Marsden ball rotates.
      3. Wearing contact lenses should not influence the therapy.
      4. If you feel reasonably OK towards the end of the day, it should be alright to study for a reasonable length of time.
      5. You could go to another doctor if you feel you should.
      6. Regarding “traps” to look for – re-read all of the text, including FAQ under Therapy, and view the video instructions more than once to completely understand the “do’s and don’ts”. Also, read my replies to some of the questions in this comment section.

  79. Hi Lisa,

    Your symptoms started after flu.. That makes me think about your sinuses.. I have been suffering since three years with these symptoms..recently optimilogist suspected on my sinuses..yes it is due to my sinus problem .. Please check may be it will be helpful

    • Thank you for your comment Rani. How is this determined by you? By means of a CT-scan or MRI-scan? I discussed this with my ENT-specialist before and he said a injured sinus will be very unlikely given the symptoms. But maybe he is wrong…

  80. By ct scan ., deviated septum .. That’s what they say but in my own experience I was not able to use electronics(tv, computer, mobile). When I was in the middle of training those Excercises Suddenly my symptoms got worst then my optometrist suspected on sinus infection. Now I am able to watch movies n use mobile phone too, less motion sickness as well. All the best.

      • Yes Dr. Gillian, that’s why I thought of commenting on Lisa’s concern. I went to many doctors with this unknown condition and gone through so much. Effected so much on my career. Felt bad that Lisa had to stop her study. Last but not least thanks to that young knowledgable optometrist who told me to check my sinuses. She told sinus issue weakens vestibular system.

  81. Do you think it’s a good idea to do the exercises everyday even after you have gotten rid of the syndrome? I have not started the exercises yet due to other health issues that I need to tackle first. But as a filmmaker I cannot risk this coming back, and I was wondering if you know anyone else whose career involved lots of movement-watching eg sports players, filmmakers etc. Or maybe there is a 10 minute top up you can do daily to prevent reaccurance?

    Many thanks

    Kate

    • Very few, if any, SS patients continue formal training after completing their therapy, and few have a relapse. I talked with one former SSS patient yesterday who completed his therapy over 25 years ago. He has done no training since and can still read in a car and none of the other symptoms have returned. If patients do regress, however, most say they can do their therapy for just a day or two and they are back to normal again. It would be OK to continue the theory after successfully completing the course, if you wanted to. I recommend all post-therapy patients do informal causal “maintenance” exercises during the normal course of the day, such as fixating on cars as they pass by at stop lights and looking far/near from TV to ones finger, periodically, for example. I am not aware of other filmmakers having this condition. For one thing, having the SSS may prevent some from going into that type of work.

  82. What I’ve read about the see-sick syndrome seems to fit exactly what I’ve been experiencing for over 9 months now. After seeing multiple doctors, an optometrist and an ophtalmologist as well as waiting 6 months without working, driving and having very limited activities, I saw a neuro-opthalmologist this morning and was diagnosed with motion induced vertigo. Is it the same as the see-sick syndrome ? He has put me on acetazolamide 250mg TID for 1 month. I spoke about neuro-ocular vestibular dysfunction to him and the possibility of rehab exercises but I didn’t get a clear answer if he knew about it. Are there scientific articles available on this issue? I can’t seem to find anything in the peer-reviewed journal databases. Any help is greatly appreciated! By the way, I’m in Montreal, Canada

  83. I am unaware of peer reviewed articles about the SSS, other than one I wrote for the Journal of the American Optometric Assn. in the 1980’s. Visual vertigo appears to be similar to the SSS (NOVD), as far as I can determine from reading journal articles about it. Most of the articles are written by high level researchers associated with teaching institutions. The terminology used tends to be somewhat different than I used in private clinic. My initial work, discoveries and techniques evolved in my private clinical practice. I am aware of two doctors of optometry in Ontario, who provide services to SSS patients. They are listed in the provider section. It is possible there other providers in your area, as well.

  84. Please look into the connection between these symptoms and Dysautonomia. For instance, becoming symptomatic after eating can well be because of the toll that digesting takes on the autonomic nervous system. In fact, if folks cross-checked the symptoms you list with those of various forms of Dysautonomia, they’d find most under both headings — not surprisingly, since the function of the vision is part of the autonomic nervous system. Optometry and Dysautonomia specialists need to get together on this. However, I prefer Dr. William Ludlam’s more visually-oriented approach, rather than the Pacific University College of Optometry’s gross motor activity approach.

  85. Dear Dr Gillilan,

    You may remember earlier this year that I asked if intra-ocular lenses could help with dizziness associated with SSS, and you thought that might be a possibility. After doing the full course of exercises last year, things did improve, but my sight got so bad I have now had intra-ocular lenses fitted and cataracts removed.

    The upshot is I now have pretty good vision (one eye long sight, one short) and don’t have to wear glasses, but the downside is the SSS symptoms are back and I’m wondering if this is due to my eyes and brain having to readjust after the IO lenses were fitted. I am still getting a bit of flicker after my second eye, but that will clear up and I want to get going on SSS again as soon as I can.

    So my question is this – do I need to start the SSS exercises from scratch again, or can I pick up at a certain point to ‘remind’ my brain what it learned last year?

    • Sorry I took so long to notice your comment.

      I think you are probably right about your brain having to adjust to your new way of seeing. Were you doing the one eye near and the other far prior to your surgery? That could be a factor, as well. I have no experience with before and after surgery cases.

      Assuming your surgeon approves of doing eye motility exercises at this time – – – you could start with the beginning exercises and then quickly progress to the level where it is a challenge and go from there. When re-training is needed, it normally goes much more quickly than the first time. For those who have a tendency to regress over time, I recommend periodic short maintenance training sessions in order to avoid the regression. Let us know how things go so we can all keep learning.

      • Dear Dr Gillilan,

        Thank you for coming back to me.
        Before surgery I had to wear glasses for near and far vision. Intermediate (computer) was a nightmare. I have balance issues and dry eyes, so couldn’t use multifocals or contact lenses.The sight in the left eye was worse than the right, and I had cataracts on each (worse on the left).

        Apparently I have double astigmatism, but when I asked the ophthalmologist about it they didn’t seem concerned about that.

        The ophthalmologist suggested that, because of my balance issues, it would be better to fit single distance vision lenses to both eyes and that I would probably need reading glasses.

        As it turned out, the first eye improved long sight to start with, then gave me great near vision – apparently this sometimes happens – so he decided to fit a long distance lens to the other. As a result, I have pretty near perfect vision and don’t wear glasses now. They were very pleased with the result and so am I.

        There was a slight complication in that I had vitreous gel partially detached on first examination, and so everything was put on hold for several months until it detached. There was a two-month gap between the first and second eyes. I don’t know about the gel on the second, but have had no problems since so assume it’s OK.

        I did notice an improvement after doing the exercises initially, and have regressed somewhat now in that I am troubled mainly by lateral movement. I no longer feel off balance when I get out of the car, which happened before the operation and didn’t really clear up with the SSS exercises. So there are pluses and minuses!

        It’s still early days and I am still experiencing a bit of shimmering in certain lights, but my vision is vastly improved. All I need now is to be able to get in a car without feeling queasy!

  86. Especially for those interested in doing “do-it-yourself” SSS training without professional assistance.

    I have posted a small group of post-therapy letters written by SSS sufferers who successfully completed their training “do-it-yourself” training a few years ago, by just following the instructions in my manual. There inspirational letters can be found in bottom portion of the “Patient Testimonial” section on this site.

    The stories of the life altering affects of the SSS and it’s cure never cease to amaze me.

  87. Hello!
    I believe I have always had mild to moderateSSS but recently, I think an inner ear virus pushed me over into chronic misery.
    it started with mild vertigo that came and went but has changed into what i believe is sickness much of the time exacerbated greatly by shopping, busy visual environments, patterns and I believe, flourescent light.
    hormones also seem to be affecting me greatly
    Is it possible that what started as an inner ear issue has morphed into SSS full time?

  88. I don’t have a definitive answer to your question. However, it seems to me when one has the SSS plus an additional condition involving the inner ear, 1 + 1 = 5.

    Also, fatigue, premenstrual, hypoglycemia, stress, exposure to motion, etc. will tend to exacerbate things.

  89. I recently went to an Optometrist who also does vision therapy. She did a thorough exam and prescribed glasses which she thinks will also help with the see sickness I have been suffering from. Did you ever prescribe glasses in addition to therapy? I know there is a small prism in one lense.
    In the past, I have only used glasses for distance for special events like going to shows. My vision did not seem to be an issue until this recent worsening of Motion Sickness symptoms which followed what I think was an inner ear virus 4 months ago.

  90. hello Dr,

    I believe I have SSS. I went to an Optometrist and she said that one of my eyes was not aligning with the other. She prescribed glasses with a prism to help my eye align but did not recommend therapy yet. In your experience, is this a separate issue? Is it possible for the the eye to re-align through your therapy? or does the therapy strengthen the muscles enough for the body to adapt to a misalignment? Or would you also recommend glasses and then the therapy? Separate question: Do you know the root cause of SSS? Why do you think hormone fluctuation affect the symptoms?
    Thank you for all of your information.

  91. You ask very good questions but I don’t have very good answers to any of them. I have heard some doctors prescribe prisms in an attempt to alleviate the symptoms, and would love to but have never learned, what their results were. So I don’t have the knowledge or experience to advise you about the glasses. However, if you decide to go that way, please let us know how it worked out. Also, it would be helpful to all who read this section, if both doctors and patients would write about their experience with prism glasses for this condition. I don’t know the root cause of SSS, but in most cases it is inherited and passes down from mother to daughter. It can occur as a result of head trauma, as well. Again, I don’t know why hormonal changes tend to affect SSS symptoms. I only know that a few patients have told me that they think they do. It would be great if some researchers would do a scientific study of this condition in an attempt to answer the many questions we have. My simple clinical approach to SSS was just “do what works”. The only thing I know for sure is that when patients had the SSS symptoms and did the dynamic adaptive vision therapy, most of them eliminated the symptoms.

    • Dear Dr Gillilan,

      I was most interested to read this and what you say makes perfect sense to me. It’s been a triple whammy.

      My mother suffered SSS symptoms.

      Regarding head trauma, my symptoms significantly worsened after head trauma and cervical disc surgery.

      On the hormonal front, SSS symptoms started in earnest after surgery made hormone replacement therapy a requirement.

      I hope this helps.

        • Dear Dr Gillilan,

          Sorry for the delay in seeing your post.

          Yes, I did the full course of exercises last year and things did improve some. But as mentioned in my previous posts i have had intraocular lens replacements in both eyes a few months ago, which is proving a challenge because I now have long vision in one eye and short in the other, which is affecting my balance. I am about to restart the exercises and will keep you posted on progress.

  92. THANK YOU! You are helping me to make the decisions about care that I have felt instinctively were the right ones. This is truly a puzzle and I finally feel closer to some relief. It is priceless for me to have realistic hope about recovery!

  93. Hello! I was so happy when I found your site two weeks ago. I actually began to cry because I had almost every symptom and finally felt like there was an answer! Over the last six months I have seen numerous specialists, had numerous test and many blood tests. Everyone was stumped by my headaches, fatigue, lightheadedness, nausea, anxiety, etc. These symptoms were made worse by shopping, crowds of people, bright environments, fatigue, low blood sugar and hormone fluctuations. Maybe more perplexing were my good days and bad days and the fact I seemed to be getting worse. After finding SSS- my husband and I printed off the instructions and watched both YouTube videos. We began slowly (10 minutes made me sick the first day). We began on a Saturday and by the following Thursday I was feeling a bit better. Thursday night I went to the grocery store and felt sick. Friday i did not feel great and then spent four hours in a limo and four hours at a gala (all made me feel ill). Saturday, I spent four hours in the car and a few hours chasing my two young children. It is now Wednesday (Day 12). I have continued to do 30 minutes a day of the beginning exercises and I still do not feel well. Each day since Friday has felt a bit worse. I live in rural Maine so there is no one here to assist me. Any insight on how to continue would be so appreciated.

    • It is possible you may be involved in too much “motion” activity between training sessions and not leaving enough “down time” to recover adequately. This is especially important during in the beginning of each phase of the training. Lots of rest if possible. If you feel sick more than 30 to 45 min. after a session, you could be over training that day. Keep reporting your progress please. Re-read the FAQ section for tips.

  94. Hi there. Do you know of any practitioners in the New York City area? If not, what is the best way to do this therapy on my own. Thank you!

  95. There are three doctors of optometry listed in New York City, under the Providers section on this website. There are probably more that are not listed. In addition, there are likely some physical therapists, specializing in vestibular rehab, that could help you. Do-it-yourself therapy is a last resort, and a complete review of ALL text and videos on this website will provide you with the “how to” instructions. Let me know what you end up doing, and how it works out.

  96. Yes. The beginning exercises can be done while sitting. If you normally can’t stand, then just sit and do all the procedures that you can in that position. If it is just the exercises that make you unsteady, sit while doing them and progress to the point where you can then stand and do them while being steady and safe. You may need to hold on to a chair or table at first. I have had a few very severe SSS patients who, needed the full body support of lying on their back on the floor at first while looking up at the swinging ball. Then progressing to sitting in a chair and then standing and finally walking while doing the advanced procedures.

  97. Hi firstly thank you for putting the website together I have suffered with dizziness for around 15 years and this is an excellent resource. I have attempted vestibular rehabilitation in the past but not to this intensity so I am very hopeful to see some success as I could have written your list of symptoms for SSS !.
    my query that I hope you can help with is about the length of the training sessions. The training sessions last from 15 to 18 minutes but do you do the ball exercises and then directly follow with a pencil exercises making one training session 36 minutes long . or should they be done separately? Thank you – Jon

  98. The goal is for patients to do both exercise groups, one following the other directly. However, it is necessary for some people to have a break between exercises if the development of symptoms, such as cause, dizziness, headache, etc., are too severe to continue without a rest period. (A moderate development of symptoms is normal and needs to be tolerated. — No pain, no gain — If there are no symptoms brought on by the exercises, the training is probably not needed. Remember also, that a very few SSS people don’t develop the symptoms until about 30 to 60 min. AFTER the exposure to motion. These people need to base the intensity of each days training on the post-therapy symptoms of the previous days session) In the early days of training, some may need to split the exercises in up to four mini sessions a day and gradually progressing to just one. Please write again, informing all of your training experiences. It would be helpful to many.

    One patient wrote after finishing her training, “It was the hardest thing I have ever done in my life, but it was worth it”.

  99. Thanks for your response. I am working hard on the exercises and I will report back. I have spent years trying to fix this and I am very optimistic that this will really help and give me quality of life back – thank you Jon

  100. I am going to start the exercises on Tuesday, however, it seems I am getting a cold. Should I wait until the cold passes to start the exercises?
    Also, it is Flu season, it may be hard to avoid the flu and colds over the next few months. How would getting the flu effect the training? Would it be better to stop during the flu/cold and restart, or is this bad for the training?

    And- I have quite a few allergies so often my sinuses can be stuffed up – would this effect the training too?

    Many thanks

  101. In a perfect world you would start the exercises when your – have a break in you daily schedule for a few days and plenty of time to devote to them – are well rested – not premenstrual – physically well – not stressed out – well nourished and not hypoglycemic – have not had a bad “motion sickness experience” in the last 2 or 3 days. However, there almost never is a “perfect” time to do them, so aim for the goals above and do the best you can. During the course of the training if you should become more than mildly ill, it is probably best to stop the training and re-start when you are reasonably well. Also, take 10 very deep breaths before starting each session.

  102. Hi there – So the training in going very well and the improvement is also going well. I am no on the advanced exercises and I have a quick query. Am I right in thinking that when you get to advance it is 15-18 minutes of spinning on the spot with the pencils and then 15-18 minutes spinning on the spot with the Marsden ball and that this effectively replaces all the other exercises? I have been amazed at how quickly you can get used to spinning on the spot with pencils compared to a couple of weeks ago. the Marsden ball that follows is always a bit more challenging at least for now anyway. Thanks again – Jon

  103. Yes, you are correct. The advance exercises take the place of all the previous ones. I am pleased that you are making the progress that would be expected. And yes, it is amazing how quickly one can advance with the training when you really work at it. Thank you for reporting your progress. You will be an inspiration to many others with the same or similar condition. In fact, I would like you to write a brief report of your case, a couple of months after the conclusion of your “do-it-yourself” training. One of my goals is to getting the SSS word out to PT’s specializing in vestibular training. They could include some of these procedures in their training for some patients.

  104. I I am currently doing vision therapy with an OD but they are focusing mostly on convergence and divergence. So I have started doing your therapy as well at home. I have found that my biggest trigger is going into places with high ceilings such as stores but also churches and anything like that. Is that a sign of SSS? Also, I do not recover when I leave the church, it just triggers the dizziness and it takes many hours for me to recover. This week I have been particularly bad and I am wondering if it is because I had multiple jobs singing at churches throughout the week in addition to doing the therapy every day. Or perhaps I am doing too much therapy.I am considering taking off for a few weeks completely from working and shopping and beginning the exercises again. Does that make sense? is it possible that I am doing too much at the same time as the therapy? It is very difficult for me as I am a busy mother of three.

  105. I have too little information to have an opinion about whether or not you have SSS . Most SSS people can fairly accurately diagnose themselves by reading the list of symptoms. Ask your OD what he or she thinks, if she is familiar with the condition. I would not recommend attempting to do two therapies at the same time. That is over-kill and possibly counter productive.

    • Thanks
      I definitely believe I have SSS.
      I fit so many of the criteria
      Of course, it has gotten so much worse in the past 5 months, there may be something else going as well although no doctors as of yet have figured it out.
      The info about attempting too much therapy is helpful to me.

      I guess my main question is: Have you ever heard of someone whose main trigger seems to be high ceilings and busy visual places?
      Second: Do these environments have a cumulative effect?

      The Dr I am seeing was listed on your site but they are following a different protocol

  106. I do not recall having patients complain about high ceilings. However, symptoms often develop in stores and similar locations for several reasons. Also, the eye movement required when in groups of people and looking back and forth from music to a director or audience could possibly be a trigger. To test that theory, while at home, you might try quickly changing your fixation on music to a distant object several times to determine if symptoms follow.

    Yes. Being exposed to symptom causing environments can have a cumulative effect which can last up to approximately three days, in some SSS patients. While in this hyper-sensitive state, one is more sensitive.

    I don’t know how long you have been doing OD directed therapy. However, when doing my DAVT, most patients note some improvement in the first week or so, even though they have exacerbated symptoms while doing the exercises.

    It would be interesting to have a phone conversation with you.

  107. My see sick syndrome has got more severe to the point where even watching somebody’s face move is causing a headache. Will the exercises still be effective for someone with such severe see sick syndrome symptoms? Do you have any advice for somebody who will be starting the training who has such severe symptoms?

  108. Yes, the training does work for most severe SSS patients if the procedures are done properly. It is a very difficult and trying process, however and hard to do without strong support from an understanding “coach”. The farther away you stand from the ball, the shorter the swing and the less time you do the exercise at one time, the easier it is to start for severe SSS patients. You might have to stand up to 8 to 10 feet away from the ball and have your “coach” swing it for you. He or she might have to hold your pencils for you at a distance and gradually work up to you holding them. Pencils close together at first and eyes moving slowly, then farther apart and faster. You might feel more stable sitting or even lying on your back on a bed or the floor, to start the exercises, then stand up against something, then on your own as you feel more stable. Maybe up to four short sessions per day to start, quickly decreasing to one as you can. Push the progress quickly and aggressively to get through the program as quickly as you can. It’s a sprint to the finish, not a marathon. All the while not over-training to the point that you don’t don’t fully “recover” to “neutral” between sessions.

    • Thank you for your reply. Should I try to rest from watching movement inbetween the training and mainly try and stare at still objects like a blank wall to rest my eyes between the training or should I try and do more normal activities (which at the moment makes my eyes worse)?
      Many thanks. Kate

    • Also, in addition to the question I have just sent you, when doing the training how will I know if I am overdoing it? Thank you again.
      Kate

  109. Hi Dr Gillilan – I wonder if you could assist with this please? I have been doing the training for around 3 weeks and perhaps moved on too aggressively to the advanced exercises. Last week I did one session of 15 minutes on the Marsden ball spinning fast on the spot followed by the same with the pencils. I really went for it! The next 2 days were accompanied with bad nausea. Over-training I suspect. So I have now jumped back to the intermediate exercises and basically do 15 minutes marsden made up of the standing still and watching the ball spinning around, the forward to back swing, following the ball around in a circle and then finally a spinning on the spot. All doen for 15 minutes solid with no break. I then go straight on to the pencils and split that 15 minutes up in walking up and down looking quickly from pencil to pencil, some near far work, moving the pencil close to the eye then way from the eyes and finally some standing on the spot rotations. Again all done with no break. I have done that form the last 2 days and still actually get a little nausea which is not something that has been with me on my 18 year journey with dizziness to date. I will of course push through it, if that is to be expected. As always, thank you for your time and response, the work you are putting in here is pretty amazing. Believe me I have spent 18 years searching for answers having gone from being hugely invloved in sport, to dizzy and unable to enjoy sport and general activities overnight, it’s been frustrating to say the least, but I will not give up! Regards Jon

  110. You are probably right about over training, that is unless there is another health factor causing the nausea. Assuming it was the training, you might try taking a day or two off from training or as long as it takes to feel “normal” again, before resuming the therapy. It is usually a good idea to take a short break from the training on a weekly basis anyway. You didn’t say if you are making any progress with your problem with dizziness. If the therapy is going to be successful, most people see some improvement within the first week or two. Please let me know.

  111. Thanks for your feedback.

    I most definitely think the nausea is related to spinning around hundreds of times on the spot for half an hour as it seems to have gone now. The exercises are definitely getting easier and less of a strain on the eyes. Whether it is helping the dizziness is an interesting one – I would say my most common symptom is that of light-headedness/floating along feeling and trouble in brightly lit areas, busy areas and after car journeys as a passenger.

    I have definitely seen the problem easing off a little but I realise this has been with me for a long time and I suspect will take quite a bit of retraining from years of avoidance tactics. Regards jon

  112. One other thing that has occurred to me that I should perhaps add is that my dizziness occurs mainly when standing and particularly when walking along – riding a pushbike for example is no problem yet when I get off it and try to walk along that is when I get the worst of the symptoms – I.e. floaty feeling lightheadedness et cetera. Regards Jon

  113. Thank you for your reply. Should I try to rest from watching movement inbetween the training and mainly try and stare at still objects like a blank wall to rest my eyes between the training or should I try and do more normal activities (which at the moment makes my eyes worse)?

    Also, when doing the training how will I know if I am overdoing it? Thank you again.
    Kate

    • It is probably best to do your normal activities when not training.

      I you are not developing some symptoms of discomfort – dizziness, nausea, headache, etc., during training, (no pain, no gain) you are probably under training or ready to move on to more advanced procedures – or finally, don’t need to do the formal therapy anymore. Or in other words, “find out what bothers you, and do it until it doesn’t”.
      On the other hand, if the symptoms you developed, over and above your normal ones, during the training session are quite severe and/or last more than a half an hour or up to an hour, or so, you probably over trained during that session. If this should happen, wait until your symptoms are back down to “normal for you” before you start your next therapy session.

  114. My wife has worn reader glasses (3.0) for 6 years for both distance and reading. Although her right eye is stronger than her left eye, her readers generally worked well for her until recently. Five weeks ago, she leaned back in a zero gravity lounge chair. It went back farther than she expected it to and she sat back up quickly. She had a sensation like her brain moved. The next day, she laid back in the chair again for one hour. After that, severe dizziness set in.
    She now gets dizzy watching TV shows with motion (e.g., panning in and out), reading, writing, scrolling on a computer or smartphone, and even sitting on chairs with seat and/or back cushions (i.e., she feels its micro-movements).
    She saw an optometrist who confirmed the disparity between her left and right eyes and merely prescribed new eyeglasses that supposedly would help her dizziness. Her new prescription glasses only exacerbated her dizziness, so she stopped using them. She went withou glasses for a few days and then resumed wearing her old reader glasses. However, she now gets dizzy doing things with her readers on that she did not get dizzy doing before she tried the new eyeglasses.
    She saw her neurologist who concluded she did not have BPPV or other vertigo, but could not diagnose any specific type of dizziness or suggest any treatment methods that could help her.
    1. Is there a name for the type of dizziness my wife is suffering from? Is it SSS?
    2. Could your visual therapy exercises for SSS help reduce her dizziness? If so, should she wait until her dizziness subsides to begin the exercises?
    3. When doing the SSS exercises, should she wear her reader glasses or no glasses (assuming she can focus on the pencils and ball letters)?

    • 1. I know of no specific name to call your wife’s condition. It sounds like she may have had a BPPV event, followed by a, something similar to SSS, condition. However, BPPV has been ruled out. A spinning room sensation sometimes indicates an inner ear condition. It is possible for a traumatic or other brain event to trigger SSS. I would not attempt to suggest a diagnosis on the internet. However, if certain head positions trigger the dizziness now, there could possibly be a combination of vestibular and SSS conditions. The SSS can usually be self-diagnosed by reading the symptom list.
      2. If attempting the exercises exacerbate the symptoms, that is a sign that she could be helped by doing them in a controlled manner. No need to wait.
      3. Regarding whether to wear glasses or not – Do whatever is the most comfortable and don’t worry about whether she can read the letters. Then progress to wearing the glasses later, if possible.

  115. Has anyone been diagnosed with Migraine associated Vertigo and still recovered with these exercises? The symptoms match exactly. It seems like a diagnoses of exclusion and I am praying that this is not my case! I do not want to take drugs.

    I had an appt with a Neurologist Monday and he thinks it is MAV. I would say it does match my symptoms but so does SSS.

    I am on day 3 of trying the DAVT and I was so hopeful that this was my answer. I guess only time will tell.

    I am wondering, however , if Dr Gillilan knows of any patients who were diagnosed with MAV or if there are any people reading this who were successful with this therapy despite a diagnosis of MAV. Also, I know that naming a condition like this does not necessarily change what will help it so I am still hopeful.

  116. I have no experience with patients diagnosed with MAV. It seems to me that SSS and MAV are different entities, even though they have some similarities. Keep in mind that I retired from active practice in 2000. The SSS and a little known condition called Visual Vertigo are much more similar and possibly the same thing. (See my comments on this under FAQ on this site) Please let me others know what effect, if any, your training has on your condition. If it is going to be effective, you should see at least some improvement in your ability to do the therapy and symptoms, within a week or two.

    • Thanks, Dr Gillilan- I am on day 4. I believe I may be a more severe case than I thought. I feel like the first 3 days may have been too intense for me so I am going to start with a little less time and hopefully build up. Today I did only 10 minutes with each (ball and pencils.)

      Yes, I believe the MAV diagnosis is a fairly recent one. It seems like a “catch -all.” Although I am sure there are real cases. I am still hopeful that the DAVT will help me! Not convinced about the MAV in my case.

      I will update as I go. Thanks

      • Hi Dr. – I started the exercises last Monday and it took off on Sunday. So today is day nine. I would say I kind of feel worse but in a different way which I am hoping means maybe I’m working my eyes in a way that is temporarily exacerbating things if that makes sense? It is hard for me to tell what level I should do because my symptoms are so variable I’m already starting off pretty dizzy. I tried to eliminate most of my other triggers this past week but that doesn’t seem to be helping . So I don’t know whether I am over training. It is not clear to me that I am worse directly following the exercises but overall the past two weeks have not been good. Light seems to be bothering me less which is a good sign!
        I am going to continue and give it more time

  117. Dear Dr Gillian. I am Dr Kovacs, who have a 28 year old daughter, who is house bound for the past 5 years. The reason for this for the large part because of her inability to travel in a car or drive a car. Her issues started back in 2010, when all of a sudden she could no longer read in the car. Than she could not sit in the back, than she could not even be a front passenger, she had to drive in order to tolerate the car ride. Than it got to where she could not handle busy interstate traffics, and got worse and worse until even a half a mile drive would make her very ill. We had thorough neurological exams and work ups, see ENT specialists, but nobody could figure out why she has motion sickness which is not originating from the middle ear. She has trouble with: motion on TV, scrolling on her phone, computer work, anything which requires tracking, such as reading, sorting. She can not tolerate any 3D movies, rocking chairs, nothing which moves underneath her She also has light sensitivity. We did see an optometrist, who diagnosed her with visual convergence insufficiency, and was treated with eye exercises, but while her convergence insufficiency improved some, her symptoms did not. I am a physician, but not an ophthalmologists or an optometrist. I found your site and wanted to see if I can discuss her situation with you please. Because of the above mentioned reason (she absolutely can not travel anywhere), I would like to discuss with you a, what is your professional opinion of her case, b, can we arrange for a talk, and include her in it, c, can I learn the therapy to give it to her, since what I read here, its only successful if a professional therapist is involved in it? I would appreciate any help and any guidance in this situation. Thank you very much for taking the time reading this. I look forward to hearing from you. Best wishes.

  118. I have a patient with similar symptoms of SSS that developed after a stroke over 2 years ago. First of all, do you have any knowledge of any optometrists near Navarre Beach, FL that are trained in working with SSS patients? Secondly, would tinted contact lenses possibly reduce triggers? He feels like his symptoms have lessened with glasses that are “filtering out blue light” that he recently purchased. Any information would be greatly appreciated. I am not in an office where we perform VT, but I would certainly like to help him by referring.

    • The only OD in Florida, that I know of, who is familiar with SSS, is Paul Rousseau of Viera, FL. but there may be others, as well. You could try contacting him to recommend an OD in your area. You could also, consider referring to a physical therapist who specializes in vestibular rehab. Some of their techniques are very similar to SSS training and it could be a good match, even if they are not familiar with SSS. All straight forward and rather uncomplicated information needed to do the Dynamic Adaptive Vision Therapy is included in this site. I think most self-diagnosed SSS patients do the DAVT on their own. You can read the comments from a few of them under “patient testimonials”, on this site. That is an alternative for your patient if he or she is highly motivated and has someone who can be their dedicated “coach” during the process.
      All SSS patients have photophobia which is diminished or eliminated if their training is successful. I have no experience with using tinted contact lenses, but that would be and option, along with sunglasses. Some pre-training SSS patients have several pairs of sunglasses with different tints for different situations. I accept and welcome calls from professionals regarding the SSS if you wish more information.

      • Thank you so very much for the quick response. You may be hearing from me in the future. Thanks for everything you have done and continue to do for patients and our education!

  119. Dear Dr Gillian. I am Dr Kovacs, who have a 28 year old daughter, who is house bound for the past 5 years. The reason for this for the large part because of her inability to travel in a car or drive a car. Her issues started back in 2010, when all of a sudden she could no longer read in the car. Than she could not sit in the back, than she could not even be a front passenger, she had to drive in order to tolerate the car ride. Than it got to where she could not handle busy interstate traffics, and got worse and worse until even a half a mile drive would make her very ill. We had thorough neurological exams and work ups, see ENT specialists, but nobody could figure out why she has motion sickness which is not originating from the middle ear. She has trouble with: motion on TV, scrolling on her phone, computer work, anything which requires tracking, such as reading, sorting. She can not tolerate any 3D movies, rocking chairs, nothing which moves underneath her She also has light sensitivity. We did see an optometrist, who diagnosed her with visual convergence insufficiency, and was treated with eye exercises, but while her convergence insufficiency improved some, her symptoms did not. I am a physician, but not an ophthalmologists or an optometrist. I found your site and wanted to see if I can discuss her situation with you please. Because of the above mentioned reason (she absolutely can not travel anywhere), I would like to discuss with you a, what is your professional opinion of her case, b, can we arrange for a talk, and include her in it, c, can I learn the therapy to give it to her, since what I read here, its only successful if a professional therapist is involved in it? I would appreciate any help and any guidance in this situation. Thank you very much for taking the time reading this. I look forward to hearing from you. Best wishes.

    • Than you Dr Gilliam.
      I did study the site as you told me.
      Please reach me at your convenience at 606-922-4748. I am in the EST zone.
      Thank you.
      Katalin Kovacs

  120. How does See Sick Syndrome interact with convergence insufficiency? I have the SSS and also convergence insufficiency, so my eyes don’t work properly together. Thanks. Sam.

  121. Sorry for the long delay in answering.
    I don’t know wether or not you had CI prior to developing the SSS. In either case, if you do the the Dynamic Adaptive Vision Therapy (DAVT), you should improve your convergence ability. That is one of expected results.

  122. To Dr. Gillilan – I have very severe SSS (can’t watch people move without symptoms) so I am planning to start 10′ away from the ball and pencils with slow, gentle movements for 5 minutes and do this 3 times a day. What do you think of this as a starting point? How quickly should I build up to the full recommended time and should I expect a worsening of symptoms initially?
    If I experience a worsening of symptoms what do you suggest – is it worth pushing through with the exercises anyway?

    • If you are still reading this – sorry for the months of delay in answering. I am back and now have the time to attend to this.

      You probably have completed your training by now. You had a very good plan. The answers to you questions are in the training instructions in this site.

      Please let us know how you are doing now.

  123. Dear Dr Gillilan,
    Thank you for taking the time to help many people who suffer from this around the globe, many wouldn’t be able to find any useful treatment without you.
    I’ve suffered from SSS since I remember, I’ve been to many doctors, have gone through 2 strabismus surgeries for my exophoria, which came back in 1-2 years after each surgery.
    I’ve just finished a computer exercise from CVS\HTS , it’s basically convergence\divergence exercises with 3D glasses.
    I’m about to start your program. Do you think I should go through all the pencil exercises , or they might cover the same rule of the “CVS” program, and I would be better off dedicating all my time to the ball exercises ?
    Thank you again.

    • I am back after a very long unavoidable absence from this forum. You are probably finished with your therapy by now, but for others who are reading this, if you can easily do the ball and pencil exercises without symptoms, it is time to go to a more advance level or discontinue the formal training. How did you do?

  124. Hello, I am a 26 year old female. I’ve been to many other doctors in the last few years. I’ve noticed that it has gotten worse. I’ve got an almost two year old. Can’t play with him at the playground, can’t take him on kiddie rides, or just run around and chase him without becoming naseous or feeling like I’m going to trip over my own feet.
    I hoped this would all be better by the time he was up and running around so I could be the good parent I hoped to be.
    The heights, oh my! I’ve become so scared of heights!
    Please help me find a doctor to help me get better. This whole thing isn’t fun. 🙁

  125. I’ve been to many other doctors in the last few years. I’ve noticed that my symptoms have gotten worse. I’ve got an almost two year old. Can’t play with him at the playground, can’t take him on kiddie rides, or just run around and chase him without becoming naseous or feeling like I’m going to trip over my own feet.
    I hoped this would all be better by the time he was up and running around so I could be the good parent I hoped to be.
    The heights, oh my! I’ve become so scared of heights!
    Please help me find a doctor to help me get better. This whole thing isn’t fun. 🙁

  126. HELP! Does anyone know if it is OK to take painkillers/paracetomol during the training? (My main symptoms are headache) The doctor doesn’t seem to be responding so if anyone else knows it would be very helpful. SAM.

  127. Dr Gillian:
    I am pretty sure I have some form of seesick syndrome. I had a broken eardrum as a child in my left ear. Now as an adult I get ocular migraines about 2 or 3 times a week. Can’t read in car. This past weekend was my 3rd time of severe vertigo motion sickness. Was on plane flying home from Florida. Took meclizine before boarding but ended up in last seat on rear of plane and upon takeoff got nauseous and ended up puking my guts out for last half of flight. Had to be removed from plane on wheelchair because I couldn’t stand up or even move without puking. Had to keep eyes closed as I was wheeled through the airport puking in a plastic bag. Finally was taken to hotel attached to Ohare airport where I laid on bed with pillow over my tightly closed eyes for next few hours. Put another meclizine under my tongue which helped some. It’s now Monday and I am home but not back to normal yet. Any advice appreciated

    Laurie Weed

    • I have returned to this forum after a very long unavoidable absence. If you have had professional evaluations to rule out other conditions, you could proceed with the training for the SSS. Make sure you read and view ALL of the material on this site prior to starting the therapy.

  128. Dottore, sono Gianluca, sono un educatore e le scrivo dall’Italia. Ho 38 anni e da quando ne ho 10 soffro molto probabilmente di questa sindrome. Corrispondono tutti sintomi ma quasi niente problemi con la luce. Il primo episodio è stato con la visione di un videogioco al computer dove le immagini si muovevano velocemente. Non posso leggere in macchina e non posso guardare in dietro quando la macchina è in movimento. Non posso sfogliare le pagine di un libro virtuale a PC e non posso guardare immagini che scorrono al PC, TV o Smart Phone in direzione orizzontale. Mi direbbe gentilmente se leggendo e applicando le sue tecniche di esercizi visivi potrebbero aiutarmi contro la vertigine e la nausea che mi durano tutto il giorno? Un saluto.

    • Translation of the above from Italian to English:
      Doctor, I’m Gianluca, I’m an educator and I’m writing from Italy. I am 38 years old and since I have 10 I most probably suffer from this syndrome. They all correspond to symptoms but almost no problems with light. The first episode was with a video game at the computer where the pictures moved fast. I can not read in the car and can not look back when the car is moving. I can not browse the pages of a virtual book on PCs and I can not watch images running on the PC, TV or Smart Phone horizontally. Would you kindly like me if reading and applying his techniques of visual exercises could help me with dizziness and nausea that last me all day long? A greeting.
      ___________________________________________________________
      My reply:
      Please excuse my delayed response. It is unusual that you are not extra sensitive to light, but it appears you have many of the other symptoms of the SEE Sick Syndrome. Therefore, I think there is a good chance the therapy, if done properly, would eliminate your symptoms. Please report your results at this site.

  129. Greetings Dr. Gillilan,

    I have read about SSS and DAVT with great interest. I have had these symptoms for over 8 years, and I am on the extreme end of the spectrum. Here are my symptoms:

    1.) On bad days, my nausea is constant. The slightest movement of my eyes or observation of any motion will increase the symptoms. This includes even the motion of my hand and the food when I am eating.
    2.) Flashing and flickering lights make me more nauseous, and I have an averse reaction to bright light.
    3.) On better days, I able to watch only TV shows with very little motion, such as CSPAN. Among the worst stimuli are scrolling screens or something moving across my field of view (such as left to right).
    4.) I am very bothered by sunlight flickering through the trees when I am driving on a sunny day.

    This condition can be quite disabling. My question is as follows: For someone severely afflicted like me, seeing a therapist for DAVT will be difficult. (On your website, you suggest that exacerbation can last up to 3 days, but I have had them last much longer.) There is an O.D. who is listed on your website and is about 20 miles from my home. However, I am afraid that just the drive getting to her will make me nauseous, not to mention the sessions themselves. Is it better for me to start very slowly at home using the ball and pencils? Any advice would be appreciated.

    Also, I was diagnosed with probable Migraine-Associated Vestibulopathy (MAV). I do not think that this is necessarily distinct from SSS. Your thoughts on this would also be of interest.

    Regards,

    Paul

  130. Only if you have been professionally evaluated and had other conditions ruled out –
    I agree you should start out very slowly at home in order that you would not be overwhelmed while driving to your therapy appointments. Read and watch (or listen to ) ALL the information on this site prior to starting. Also, prior to starting, be well rested, have adequate nutrition and not be in a severe post-motion exposure state. The lighting level in your training room should be at your comfort level. You may need to lie on your back or stand away ten feet or more while observing the swinging ball, while swinging the ball only inches for a few seconds repeatedly. With the pencils, start by holding them at arms length and only an inch or two apart for a few seconds, then repeat as you can. Be careful not to overtrain but if you do, you may wish to wait until your symptoms subside before re-starting.

    Other severe SSS patients who reported being nauseous or dizzy when eating (because of the hand motion, it turned out) have been cured by DAVT. These patients were highly motivated, which is a major factor in the training.

    I have no personal experience with MAV patients and only limited knowledge about it. (I retired from active clinical practice in the year 2000). I agree there are similarities between with SSS, but am not sure if they are essentially the same condition with different names.

    Please report your progress on this comment section.

    • Thanks Dr. Gillian. As far as being professionally evaluated, this is what I have done:

      1.) Complete office exam by ENT/balance specialist. He felt I was suffering from anxiety and it would go away on its own.

      2.) Complete office exam by otologist. This included vestibulo-ocular reflex test. He felt I probably was suffering from MAV.

      3.) Probably 10 office exams by GP (over 8 years) with complete blood tests. He had/has no answers, but feels I probably have something going on in the inner ear.

      Does this seem adequate?

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